¿Cómo reciben los padres la noticia del diagnóstico de su hijo con síndrome de Down?: what do the parents think? / Receiving the diagnosis of Down syndrome
Rev. méd. Chile
;
141(7): 879-886, jul. 2013. ilus
Artículo
en Español
| LILACS
| ID: lil-695769
ABSTRACT
Background:
Having a child with Down syndrome (DS) is usually unexpected and stressful.Aim:
To describe the experiences of parents of children with DS at the time of diagnosis. Material andMethods:
A self-administered survey was answered by 345 parents (62% women) with an offspring with DS.Results:
Eighty four percent of parents received a postnatal diagnosis of DS, 32.3% were informed of the diagnosis in the presence of his or her partner and 19.3%o received some form of printed material regarding DS. Fifty six percent of respondents considered that the delivery of the diagnosis was inadequate. Factors associated with an overall positive experience were prenatal diagnosis (Odds Ratio (OR) 3.91 (95% Confidence Intervals (CI) 2.06-7.44)) and the presence of both parents at the time of the delivery of the diagnosis (OR 1.84 (95%> CI 1.16-2.91)). Fifty three percent of respondents believe that prenatal diagnosis of DS is preferable.Conclusions:
The majority of parents are unsatisfied with the way the diagnosis of DS is delivered. Efforts should be made to educate health personnel regarding the delivery of the diagnosis of SD, to foster opportunities for prenatal diagnosis and to improve the delivery of printed material.
Texto completo:
Disponible
Índice:
LILACS (Américas)
Asunto principal:
Padres
/
Relaciones Profesional-Familia
/
Síndrome de Down
/
Comunicación
Tipo de estudio:
Estudio diagnóstico
/
Estudio observacional
/
Investigación cualitativa
/
Factores de riesgo
Límite:
Adulto
/
Femenino
/
Humanos
/
Masculino
/
Recién Nacido
Idioma:
Español
Revista:
Rev. méd. Chile
Asunto de la revista:
Medicina
Año:
2013
Tipo del documento:
Artículo
País de afiliación:
Chile
Institución/País de afiliación:
Red de Salud UC/CL
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