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Clinical Practice Guideline for Adolescent & Adult Patients with Spinal Muscular Atrophy / 罕见病研究
JOURNAL OF RARE DISEASES ; (4): 377-397, 2023.
Artículo en Inglés | WPRIM | ID: wpr-1004965
ABSTRACT
In recent years, spinal muscular atrophy (SMA) has made progress in multidisciplinary treatment and disease-modifying therapeutic drugs, so that the progress has significantly improved the survival and quality of life of the patients. However, no clinical practice guideline has developed for the management of SMA in adults and adolescents patients. Experts of multidisciplinary from a number of tertiary medical centers in China who specialize in the diagnosis and treatment of SMA have come to an agreement based on the evidence-based medicine. This guideline serves as instrumental reference for the standardized care of the Chinese SMA patients.

Texto completo: Disponible Índice: WPRIM (Pacífico Occidental) Idioma: Inglés Revista: JOURNAL OF RARE DISEASES Año: 2023 Tipo del documento: Artículo

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Texto completo: Disponible Índice: WPRIM (Pacífico Occidental) Idioma: Inglés Revista: JOURNAL OF RARE DISEASES Año: 2023 Tipo del documento: Artículo