Discussion on Benefit-Sharing Rights of Human Subjects in Medical Research / 中国医学伦理学

ABSTRACT

Various forms of benefits may be obtained from biomedical research,including proven most effective prevention,diagnosis and treatment methods,progeny,derivative and compound produced by the human tissue of subjects,and the research data obtained with the forms of patents or trade secrets.Because the subjects participate in the research and thus take the risks,provide human tissues for the study and the genetic information or medical information attached to human tissue and so on,benefit-sharing rights of subjects can be defended from the two angles of retributivism and utilitarianism.Benefit-sharing rights of subjects can be realized through various ways such as autonomous negotiation,ethical review,statutory sharing,or judicial review.