IBD2020 global forum: results of an international patient survey on quality of care
Intestinal Research
;
: 537-545, 2018.
Artículo
en Inglés
| WPRIM
| ID: wpr-717951
ABSTRACT
BACKGROUND/AIMS:
IBD2020 is a global forum for standards of care in inflammatory bowel disease (IBD). The aim of the IBD2020 survey was to identify and describe variations in quality care of IBD.METHODS:
Patients with IBD from Finland, Italy, France, Canada, Germany, UK, Spain and Sweden were surveyed during 2013 to 2014, covering disease characteristics; impact on life and work; organization and perceived quality of care.RESULTS:
Seven thousand five hundred and seven patients participated (median age, 39 years [range, 10–103 years]; 2,354 male [31.4%]), including 4,097 (54.6%) with Crohn’s disease (CD) and 3,410 (45.4%) with ulcerative colitis (UC). Median time from symptom onset to diagnosis was 1 year for both CD (range, 0–47 years) and UC (range, 0–46 years), with no clear evidence of improvement in diagnostic delay over the preceding 24 years. Half of the patients (3,429; 50.0%) rated their care as “excellent” or “very good,” with similar results for CD and UC across countries. Five factors were significantly (P < 0.01) associated with perceived good quality of care quality of specialist communication; review consultation being long enough; failure to share information; no access to a dietician; speed of advice.CONCLUSIONS:
The IBD2020 survey has highlighted areas related to quality of care of IBD from the patients’ perspective, with scope for improvement.
Texto completo:
Disponible
Índice:
WPRIM (Pacífico Occidental)
Asunto principal:
Calidad de la Atención de Salud
/
España
/
Especialización
/
Suecia
/
Canadá
/
Enfermedades Inflamatorias del Intestino
/
Colitis Ulcerosa
/
Enfermedad de Crohn
/
Encuestas y Cuestionarios
/
Diagnóstico
Tipo de estudio:
Estudio diagnóstico
/
Guía de Práctica Clínica
/
Estudio pronóstico
Límite:
Humanos
/
Masculino
País/Región como asunto:
America del Norte
/
Europa
Idioma:
Inglés
Revista:
Intestinal Research
Año:
2018
Tipo del documento:
Artículo
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