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Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language
Gonçalves, Rafaela Silva Guimaraes; Heaney, Alice; McKenna, Stephen P; Carvalho, Jonas Braynner; Vidal, Maria Eduarda Lima; Brito, Marina Coelho Mores de; Duarte, Angela Luzia Branco Pinto.
  • Gonçalves, Rafaela Silva Guimaraes; Universidade Federal de Pernambuco. Hospital das Clinicas. Recife. BR
  • Heaney, Alice; Galen Research Ltd. Manchester. GB
  • McKenna, Stephen P; Galen Research Ltd. Manchester. GB
  • Carvalho, Jonas Braynner; Universidade Federal de Pernambuco. Hospital das Clinicas. Recife. BR
  • Vidal, Maria Eduarda Lima; Universidade Federal de Pernambuco. Hospital das Clinicas. Recife. BR
  • Brito, Marina Coelho Mores de; Universidade Federal de Pernambuco. Hospital das Clinicas. Recife. BR
  • Duarte, Angela Luzia Branco Pinto; Universidade Federal de Pernambuco. Hospital das Clinicas. Recife. BR
Adv Rheumatol ; 61: 13, 2021. tab, graf
Article Dans Anglais | LILACS | ID: biblio-1152732
ABSTRACT
Abstract

Introduction:

Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA.

Objectives:

The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL.

Methods:

The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument.

Results:

Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare.

Conclusions:

The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials.
Sujets)


Texte intégral: Disponible Indice: LILAS (Amériques) Sujet Principal: Qualité de vie / Arthrite psoriasique Limites du sujet: Humains Pays comme sujet: Amérique du Sud / Brésil langue: Anglais Texte intégral: Adv Rheumatol Thème du journal: Artrite / Reumatologia Année: 2021 Type: Article Pays d'affiliation: Brésil / Royaume-Uni Institution/Pays d'affiliation: Galen Research Ltd/GB / Universidade Federal de Pernambuco/BR

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Texte intégral: Disponible Indice: LILAS (Amériques) Sujet Principal: Qualité de vie / Arthrite psoriasique Limites du sujet: Humains Pays comme sujet: Amérique du Sud / Brésil langue: Anglais Texte intégral: Adv Rheumatol Thème du journal: Artrite / Reumatologia Année: 2021 Type: Article Pays d'affiliation: Brésil / Royaume-Uni Institution/Pays d'affiliation: Galen Research Ltd/GB / Universidade Federal de Pernambuco/BR