Genetic justice and the health care rights of rare disease / 中国医学伦理学

ABSTRACT

Health care is a hot issue.Health care insurance started to cover rare disease since 2000 in Taiwan,which made it one of the few countries following USA,EU and Japan to have such policy and law.This development shows the humanistic side of Taiwan health care policy,but the problem of fair medical resources allocation needs further analysis.Norman Daniels's development of the justice theory of John Rawls is the most comprehensive and reasonable one in the field of health care.This paper starts with Daniels analysis of the justice of genetic intervention and health care and explores the difference between Daniels and Confucain views on these two areas.Finally it tries to argue how the two could contribute to the solution of some of the problems in the field.