Psychological experience of patients with androgen insensitivity syndrome in the process of diagnosis and treatment: a qualitative study / 现代临床护理

ABSTRACT

Objective To explore the true feelings and emotional needs of the patients with androgen insensitivity syndrome (AIS) during diagnosis and treatment. Methods In this qualitative study, the phenomenological research method was conducted among 9 patients with androgen insensitivity syndrome. The data were analyzed by using Colaizzi analysis method. Result The AIS patients during the diagnosis and treatment experienced six psychological feelings: eagerness to understand disease knowledge, gender cognition disorder inferiority, self-pity, anger and resentment, feeling at a loss about future, general symptoms, and anxiety for social acceptance. Conclusions Nurses should provide relevant information guidance and emotional support to alleviate patients'negative emotions and enhance their confidence in the treatment. The nurses should encourage family members of the patients to participate in psychological counselling, expand social support through multiple channels, correct patients'psychological biases, and restore their self-confidence.