Calidad de vida en niños mexicanos con fibrosis quística / Quality of life in mexican children with cystic fibrosis

RESUMO

Our interest was to determine the quality of life of mexican children who attended to the National Institute of Pediatrics in Mexico City. A comparative, observational, descriptive and retrospective study was done in children diagnosed with cystic fibrosis with ages between 5 to 18 years. The FQ Mex scale was administered to each child in order to determine their quality of life. A comparison with children without cystic fibrosis was done. Twelve boys and 6 girls with cystic fibrosis were included and 9 healthy children were enrolled as controls. A statistical difference was found between both groups in the FQ Mex scale (p<0.05) for the respiratory area which did not occur with the infectious, gastrointestinal, genitourinary and nutritional aspects. The most probable explanation that it is easier to control these clinical areas with antibiotics and pancreatic enzymes than the respiratory symptoms. The FQ Mex scale is a useful instrument that provides a good idea of the quality of life in children with cystic fibrosis