Reconocimiento del niño con síndrome de Down como un sujeto de crianza / Recognizing a child with Down's syndrome as a subject of parenting

RESUMEN

OBJETIVOS:Describir el reconocimiento del niño con síndrome de Down como sujeto de crianza y de acompañamiento por parte de la madre. METODOLOGIA:investigación etnográfica con participación de 20 madres de niños con síndrome de Down, mediante entrevistas semiestructuradas y observaciones de campo, con análisis categorial y revisión documental. RESULTADOS las madres experimentan tristeza y ansiedad frente al encuentro de un niño con síndrome de Down, dadas las concepciones culturales y sociales, pero en la convivencia y en el vínculo madre-hijo surge un sujeto posible de crianza igual a otro sin síndrome. DISCUSION: el niño se transforma en sujeto social para su madre cuando logra metas en su crecimiento y desarrollo y así ella lo percibe. CONCLUSION las madres de este estudio descubren en la convivencia con su hijo que emerge un sujeto social con la condición de síndrome de Down, con potencialidades de acompañarlo en su crianza y, por tanto, realizarse como madre.

ABSTRACT

OBJECTIVE: to describe how the children with Down`s syndrome are recognized by mothers as subjects of parenting and accompaniment. METHODOLOGY an ethnographic study whose participants were 20 mothers of children with Down's syndrome. Data were collected using semi-structured interviews and field observations. Similarly, this study included a categorical analysis and a literature review. RESULTS: given the cultural and social conceptions regarding this condition, mothers experience sadness and anxiety upon giving birth to a child with Down's syndrome. Despite this, and thanks to coexistence and to the mother-child bond, the child is later perceived as a subject of parenting who is equal to another person without the syndrome. DICUSSION children become social subjects when they achieve their goals in growth and development, and mothers can perceive this. CONCLUSION: by living with their sons, the mothers participating in this study discovered that their sons emerge as social persons with Down's syndrome. The mothers also discovered that these individuals have their own potential and that it is possible to accompany them through parenting and therefore to realize themselves as mothers.