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1.
Ethn Dis ; 31(3): 407-410, 2021.
Article in English | MEDLINE | ID: covidwho-1318484

ABSTRACT

Purpose: Enhancing the bidirectional benefit of precision medicine research infrastructure may advance equity in research participation for diverse groups. This study explores the use of research infrastructure to provide human-centered COVID-19 resources to participants as a part of their research participation. Design: The All of Us New England (AoUNE) consortium research team developed standardized check-in telephone calls to ask participants about their well-being and share COVID-19 resources. Participants: A total of 20,559 participants in the AoUNE consortium received a COVID-19 check-in call. Methods: Research assistants called participants during March-April 2020, distributed COVID-19 resources to interested participants, and subsequently rated call tone. Results: Of the total cohort participants called, 8,512 (41%) spoke with a research team member. The majority of calls were rated as positive or neutral; only 3% rated as negative. African American and Black as well as Hispanic populations requested COVID-19 resources at higher rates than other groups. Conclusions: Calls made to AoUNE participants were received positively by diverse groups. These findings may have implications for participant-centered engagement strategies in precision medicine research.


Subject(s)
COVID-19 , Population Health , Humans , Precision Medicine , SARS-CoV-2
2.
Trends Mol Med ; 27(2): 97-100, 2021 02.
Article in English | MEDLINE | ID: covidwho-927683

ABSTRACT

The striking imbalance between disease incidence and mortality among minorities across health conditions, including coronavirus disease 2019 (COVID-19) highlights their under-inclusion in research. Here, we propose actions that can be adopted by the biomedical scientific community to address long-standing ethical and scientific barriers to equitable representation of diverse populations in research.


Subject(s)
COVID-19/epidemiology , Epidemiologic Research Design , African Americans , Humans , Incidence , Mortality , Research , SARS-CoV-2 , Social Justice/trends
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