Your browser doesn't support javascript.
Show: 20 | 50 | 100
Results 1 - 6 de 6
Filter
1.
Can J Public Health ; 111(4): 454-457, 2020 08.
Article in English | MEDLINE | ID: covidwho-1389875

ABSTRACT

Sharing data expediently for pandemic response purposes exposes healthcare providers in Canada to significant regulatory uncertainty. Duplicative and contradictory ethical and legal duties flowing from overlapping sources can stifle flows of medical data among clinicians, researchers, and institutions. Authorities should support caregivers and accelerate research by providing clear guidance to the health sector. Institutions should foster robust data stewardship and standardize their practices to those recognized among the international health informatics community. Reform is critical to ensuring Canadian healthcare providers can deliver efficient health responses that are integrated with dispersed and disparate national and international approaches.


Subject(s)
Biomedical Research , Coronavirus Infections/epidemiology , Pandemics/prevention & control , Pneumonia, Viral/epidemiology , Privacy/legislation & jurisprudence , Public Health , COVID-19 , Canada/epidemiology , Humans
2.
Front Genet ; 12: 659027, 2021.
Article in English | MEDLINE | ID: covidwho-1211806

ABSTRACT

The COVID-19 pandemic has underscored the need for new ways of thinking about data protection. This is especially so in the case of health research with children. The responsible use of children's data plays a key role in promoting children's well-being and securing their right to health and to privacy. In this article, we contend that a contextual approach that appropriately balances children's legal and moral rights and interests is needed when thinking about data protection issues with children. We examine three issues in health research through a child-focused lens: consent to data processing, data retention, and data protection impact assessments. We show that these issues present distinctive concerns for children and that the General Data Protection Regulation provides few bright-line rules. We contend that there is an opportunity for creative approaches to children's data protection when child-specific principles, such as the best interests of the child and the child's right to be heard, are put into dialogue with the structure and logic of data protection law.

5.
SSRN; 2020.
Preprint | SSRN | ID: ppcovidwho-1447

ABSTRACT

Background: SARS-CoV-2 belongs to a subgrouof coronaviruses rampant in bats for centuries. It has caused the COVID-19 pandemic. Most patients recover, but a m

6.
J Law Biosci ; 7(1): lsaa020, 2020.
Article in English | MEDLINE | ID: covidwho-690685

ABSTRACT

Effective responses to the COVID-19 pandemic require novel solutions for research and responsible data sharing. Biobanking presents itself as a key priority in furthering our understanding of COVID-19. In this article, we propose a tripartite approach to consent to create resources for research relating to COVID-19. The approach aims to link three levels of participation: COVID-19 patients, respiratory/infectious disease patients, and longitudinal study participants. We explore the potential approaches that can be taken to consent processes with these three participant groups. We furthermore describe an access model for both single-site and multi-site data and sample storage. Through dealing with these topics at a high level, the model may be adapted to local legal and ethical requirements while still pursuing its ultimate goal: the creation of a research infrastructure that supports transparent, strong, and open science.

SELECTION OF CITATIONS
SEARCH DETAIL