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This paper focuses on the information sharing behaviour of users within a micro-blogging platform, Twitter. We propose an explanatory model of the performance of a message by taking into account the external cues (source and form of the message) beyond the content and meaning of the text, and we test it empirically, on a corpus of nearly 800,000 original tweets sent by about 235,000 users over a period of 7 months concerning the Covid-19 epidemic in France. We thus show the importance of the source's credibility and its strategy on the platform, but also of the form of the post, its composition and its degree of elaboration. These elements are nuanced by the level of engagement of the source in the topic of conversation on which it intervenes and by the context in which these messages are sent and received. © 2022 Authors. All rights reserved.
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There are lots of social media tools that are accessible for medical or healthcare professionals, which include different social networking blogs, microblogs, media-sharing sites, wikis, virtual reality. All these different media tools can be utilized to develop or improve specialized networking and organiza tional promotion, education, patient education, patient care, and different public health agendas. But they also can perpetuate the risks to patients and healthcare professionals regarding the circulation of low-quality information, violate the patient privacy, and also have legal issues. To prevent all these risks, professional organizations and healthcare institutions have introduced a few guidelines. These guidelines were established to deliver emergency medicine residency programs control with leadership and best perform in the suitable practice and guidelines of social media but are valid to all residency programs that desire to create a social media presence. In this chapter, the authors describe how socialmedia made their impact on this pandemic COVID-19 situation. Copyright © 2023 Ubiquity Press. All rights reserved.
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The COVID-19 pandemic has disrupted the entire human race's routine and put a temporary halt to global interactions. This epidemic has also had a negative influence on academic libraries. This is one of the most serious consequences of the COVID-19 Pandemic for academic libraries, particularly at Malaysia's Institute of Teacher Training. It also, predictably, gives libraries the potential to shift their traditional role in offering services by utilizing the most up-to-date technologies. The purpose of this study was to show how academic libraries use social media platforms to deliver library services, highlighting the importance of strong and structured collaboration to reach customers during this epidemic. At the same time to increase users in the virtual world, promote library services and activities in a more engaging way. Copyright © 2022 Wolters Kluwer Medknow Publications. All rights reserved.
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Introduction: Hand dermatitis causes significant physical, psychosocial, and economic burden. The internet is a major source of health education for patients. Here, we evaluate the readability, quality, and comprehensiveness of online health resources on hand dermatitis. Methods: On July 27th 2021, a Google search was conducted with terms “hand dermatitis” and “hand eczema” and the first 40 items were evaluated. Articles that were advertisements, blogs, intended for professionals, scientific papers, or irrelevant were excluded. Contents of articles were evaluated using several validated grading tools/criteria for readability and quality and Pearson’s correlation assessed the relationship between readability and quality. Results: Twenty-three articles met inclusion criteria. Average readability was at the 11th-grade level (range 7.7-15.6). University-level reading comprehension (≥13th grade) was required for 5/23 websites. The highest quality website based on the Discern instrument was Medical News Today (55.5);nearly half of the websites (48%, 11/23) rated as poor or very poor. The average JAMA benchmark score was only 1.4/4. Nineteen websites contained images (83%) and only 4 websites (21%) included images representing hand dermatitis in skin of color (SOC). Quality and readability of the articles were significantly correlated (P =.02). Conclusion: Our results demonstrate that generally, articles were too difficult to read, have low quality, and lack representation of SOC images. With increases in hand dermatitis in the setting of frequent hand-hygiene practices during the COVID-19 pandemic, it is important for online health information to improve in readability, quality, and inclusion of SOC images to optimize online patient education.
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Background: Many patients with cancer (PwC) possess a suboptimal understanding of their chemotherapy treatment plan.1 Accordingly, PwC may seek information regarding both the disease and its treatment from other resources. Purpose: A freely-accessible website was curated by oncology pharmacists to provide evidence-based educational material on chemotherapy treatment plans. Objective: To use the website to deploy an online survey assessing other modes of education routinely accessed by PwC. Methods: Between February 2020 and January 2021, PwC completed an anonymous, English language survey via www.chemoexperts.com. Results: A total of 1,036 self-identified patient users began the survey. The majority were from North America (75%). Most respondents (65%) were female. PwC were asked: “If you received education from a health care professional (HCP), what type of education did you receive?” Multiple responses were allowed. Of the 820 patients who responded to this question, 77.4% (n = 635) were given printed material, 52.3% (n = 429) were taught in clinic, 8% (n = 66) were shown videos, 5.7% (n = 47) participated in an educational class outside of clinic, and 4% (n = 33) were given magazines. Roughly 37% were directed to an internet site (n = 304;92 to chemoexperts. com, 212 to other internet sites) by a HCP. Patients also reported using blogs (12.7%;n = 111/873 respondents), websites other than chemoexperts (85%;n = 742/873), support groups (28.4%;n = 248/873), and YouTube (15.1%;n = 132/873). Discussion: In-person teaching sessions are vital to understanding treatment plans. While the ongoing COVID-19 pandemic may have lowered the percentage of PwC who are offered teaching, some PwC may still not absorb or retain all there is to know during in-person sessions and seek other resources to bolster their understanding of treatment. Although the majority of users reported receiving printed material, this too may be limited in its ability to meet the needs of all individuals. Knowing PwC may seek varying modes of education, HCPs should direct patients to resources they are familiar with. Conclusions: To our knowledge, this is the first global survey to examine modes of education utilized by PwC. Although PwC may receive teaching in person, many still seek a variety of educational resources outside of clinic. Relying solely on printed material will not meet the needs of some PwC. When educating PwC in clinic, HCPs concerned about the validity of outside materials should direct patients to resources they are familiar with and trust. Reference: Almalki H, Absi A, Alghamdi A, Alsalmi M, Khan M. Analysis of Patient-Physician Concordance in the Understanding of Chemotherapy Treatment Plans Among Patients With Cancer. JAMA Netw Open. 2020 Mar 2;3(3):e200341.
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Background: The COVID-19 pandemic has brought signifcant changes to the work of healthcare professionals around the world. Technologies of tele-medicine counseling and education of patients have become widespread. The largest platforms for informing patients are social networks such as Facebook, Instagram, Twitter. Objectives: to study the possibilities and impact of the social network as a digital medical tool on the education and management of rheumatological patients Methods: The study was conducted in the form of a survey in the social network Instagram in the blog @revmatologg-sarapulova, dedicated to the rheumatological diseases, and was dedicated to the level of information. At the time of the survey, the number of subscribers to the blog was 4895 people, 223 people answered the questions submitted. The survey was conducted in a Google form and was anonymous. Results: 86% of respondents lived in Russian Federation, 17.5%-in the survey region, 14% of patients were from other countries. 72% indicated the presence of rheumatic disease as the reason for reading the blog, 7%-disease in relatives, 14% are guided by the desire to know more about rheumatological diseases. 68.5% of the respondents rated the information presented in the blog as very interesting (10 points on a scale from 0 to 10), 13.3%-9 points and 9.1%-8 points. It should be noted that none of the participants in the study gave less than 5 points. The most interesting in the blog, the majority calls information posts (88.8%) and answers the questions (77.6%). 2 out of 3 patients (64.5%) after getting acquainted with the information provided began to know more about their disease, 14% began to lead a healthier lifestyle, 9.8% realized the need to visit a doctor. 83.3% of participants rated the information on the blog as more detailed than what they get at their doctor's appointment, and 81% would seek advice from a blogger. When answering the question 'Do you share the information you get from the blog with your healthcare provider?' 47.2% noted that they prefer not to report, 28%-report, while 44.9% of respondents indicated that the doctor is neutral about the information received, 22.9%-positively, 7.6%-negatively. In general, 86% agreed that social networks are an important source of medical information, and as other sources they noted self-search for information in the Internet and visiting a doctor. 65.7% of the respondents asked the question to the author of the blog and received a response that was helpful in 90.6% of cases. 36.8% previously applied for telemedicine counseling through any messengers/systems, and 20.1% plan to do so. In 57.8% of cases, the opinion of the attending physician coincided with the result of a telemedicine counseling, in 12.8% it did not, and 17.8% of patients consulted only online. Conclusion: social networks are an important source of information for patients and a means of choosing a medical specialist. However, it is alarming that in about half of the cases, patients do not share the information received with the attending physician, which can be explained both by lack of time and the lack of an adequate level of trust.
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Background: Two million people in Switzerland suffer from rheumatic diseases. The Swiss League against Rheumatism is committed to helping those affected. It provides them and their relatives with professional, neutral information on the subject of rheumatism. The Swiss League against Rheumatism has been publishing the podcast series 'Rheumatism in person' since 2021. In it, affected people discuss relevant and current topics about living with rheumatism with experts. Another aim is to devote time to the personal experiences of sufferers. The pool of experts includes medical specialists, nutritionists, social counsellors and psychologists. Objectives: The Swiss League against Rheumatism, as the national umbrella organisation, is expanding its communication services via the podcast in order to reach even more people with rheumatism in Switzerland. This makes it is possible to increasingly address a younger, digital-savvy target group and to expand the service proposed for this target group. The podcasts are primarily aimed at people with chronic forms of rheumatism between the ages of 25 and 50 and their relatives in German-speaking Switzerland. A further aim is to bring the opinions of those affected to the attention of the public, as well as to provide information from specialists, thereby creating greater awareness of the disease. Methods: Each podcast episode is about 30 minutes long. According to experience, this length is the most popular with most listeners, whilst also allowing complex topics to be explored in depth. The podcasts are issued monthly. This enables listeners to be prepared for a fxed release date. The episodes are produced in cooperation with a podcast agency. The advantage of an agency lies in its expertise and experience, especially in the technical feld. Funding for the podcast episodes can be secured from sponsors. 'When things get complicated-social counselling for rheumatism', 'Sport and rheumatism-anything but a contradiction' or 'Rare forms of rheumatism-lupus, EDS & co.' are popular episode titles, to name but a few. The podcasts are available on various international podcast platforms. The episodes are distributed via blog posts, existing newsletters and social media (Facebook, Instagram and LinkedIn). External distribution channels are used in the form of the interviewees' networks, the 'Junge mit Rheuma' (young people with rheumatism) group, national patient organisations, cantonal/regional rheumatism leagues, the Swiss Society of Rheumatology and any media coverage attracted. Results: So far, the eleven episodes and accompanying trailer have been downloaded or streamed over 8,200 times by 5,300 unique listeners. All eleven topics were of great interest. The episode on 'Anti-infammatory nutrition' generated the most downloads (1,550), closely followed by the episode on 'The coronavirus pandemic with rheumatism', which reached just under 1,300 downloads (as of 21 January 2022). On 15 March 2021, the podcast series also made it onto the podium of a well-known podcast chart in the feld of medicine. This clearly shows that there is a need among rheumatism sufferers and their relatives to obtain information via podcasts. The large quantity of positive feedback from patients, rheumatologists and other health professionals is particularly noteworthy. 'From the frst second: very interesting topics, well produced and a great voice,' shared a listener. Conclusion: The podcast series has proved successful and will therefore be continued as a complementary communication tool for the Swiss League against Rheumatism. In addition to the episodes already released, another ten episodes are planned in German. The Swiss League against Rheumatism is keen to extend the podcast series to the French-speaking part of Switzerland. The idea is therefore to include French episodes in 2022. There are specifc plans to record three episodes, which will be broadcast in the second half of the year. The aim is to add more episodes to the French podcast series in the long term.
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Purpose/Objectives: 1. Describe the clinical trial consideration process from family point of view, so parents know the questions to ask and providers can support them 2. Place consideration in context of life with a child having a rare disease/disorder, to prepare both parties for what lies ahead 3. Illustrate variety of decisions and outcomes that families experience, to emphasize that there is no one right answer Design/Methods: The project is a digital library (unit) of content presented in a variety of media (video, downloadable guide, podcast, blog) and organized around subjects of greatest potential concern and interest to families and providers based on the described experience of families who considered and/or enrolled in a clinical trial. Unit is available online, free, 24/7. Results: The Evaluating the Clinical Trial Option unit was introduced in February 2020. In 12 months, there were 9,640 video views, the guides were viewed 226 times, and the Guided Pathway visited 356 times. (numbers would be updated for the poster). Staff has presented its content to numerous gatherings of providers, patient disease groups, and industry professionals to overwhelmingly positive feedback. Professionals serving the rare disease community, especially patient advocates at biotech companies and patient disease groups, have reached out to CPN for resources from the unit to meet particular needs: e.g. content about informed consent helped a family understand the restrictions around posting to social media and content about inclusion criteria -- including a parent's hope to 'train' towards meeting the criteria, as well as the potential for parents to feel they have failed if their child does not meet that criteria -- helped a parent navigate their stress and worry about COVID-induced disruptions to their child's physical therapy prior to seeking participation in a trial. Companies have reported valuing the unit as a therapy- and industry-neutral, unbiased source of information for families. Companies link to it in their patient support portals and use the videos for in-service training. The patient disease group NTSAD, anticipating multiple clinical trials for its affected families, links to the unit on its website and sends families considering enrollment links to it in email communications. The American Society of Gene and Cell Therapy has recognized the unit for covering the emotional aspects of trial participation that are not covered in their resources and has embedded links to it in their patient- and provider-facing websites. Conclusion/Discussion: The unit was designed as a resource to share with families and for their self-service, but grows in momentum and impact as it is used as a resource for educating colleagues -- including genetic counselors, medical geneticists, doctors working with rare disease patients - and peers striving to better understand the lived family experience.
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Background: Global health education in residency programs has grown tremendously and includes experiential based learning at international sites. Due to COVID-19, our residency global health program is unable to offer away rotations. To fill this gap, a virtual 4-week global health pandemic elective was created to highlight many concepts aligned with practicing pediatrics globally. Methods: The elective was developed over a month and includes the following learning objectives: history, evolution and lessons learned from previous pandemics;pandemic preparedness;ethical dilemmas impacting patient care;crisis/emergency risk communication training;traumatic stress among patients and providers;and health disparities relating to the pandemic. Informational resources included self-directed online modules from the CDC, WHO, National Child Traumatic Stress Network, and online lectures from the University of Minnesota's “Disaster Preparedness and Infectious Disease Outbreaks” course. Webinars, articles, podcasts from medical journals and newspapers were used to highlight topics about preventing pandemics and healthcare disparities. Methods used to encourage interactive learning included: online daily debriefs, mostly resident led;virtual “flipped classroom” sessions with international partner sites to allow resident exposure to international faculty and trainees;and weekly reflections and blog entries to provide feedback. At the end of the elective, residents completed a final presentation combining core concepts from the elective, which was presented to the pediatric residency program at large. Faculty met weekly to discuss resident progress and to modify material to reflect the evolution of current events. Qualitative analysis of resident evaluations was used to assess and modify the elective as needed. Results: Since March 2020, 9 blocks have been completed with 21 residents. This elective will be offered 4 times in the 2021-2022 academic year, with 10 residents who have already signed up. Residents completed anonymous course evaluations at the end of the elective (Table 1). A majority of evaluation criteria were given an average score greater than 4. The average score of 3.6 seen in clinical experience reflects the fact that we are not traveling and residents do not have hands-on clinical time. Comments from resident evaluations were notable for learning about the framework to prepare for pandemics and learning about health care issues seen during pandemics in low resource nations. Residents particularly enjoyed sessions with our partners in India, Kenya, and North Dakota. They appreciated the variety of self directed materials and enjoyed having thought provoking discussions. Several residents recommended the elective to their peers. Conclusion: This virtual elective appears to be positively received for residents who did not travel for their global health electives while learning key global health concepts. While virtual learning is not a substitute for traveling, this elective successfully allowed for teaching residents core principles and may be a model for replication for other residency global health programs.
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In the advent of Natural Language Processing, what finds itself in much use is analysis. This research paper finds itself in reference to the same that enables it in analysing sentiments of a text. The tasks that were covered in working with NLP includes – firstly, differentiating tweets on the basis of claims and facts, and secondly to create an effective classifier that finds out if a tweet is anti-covid vaccine, pro-covid vaccine or neutral. The beauty of our paper resides in the fact, that we have hit high end accuracies without using hefty algorithms, namely 93% for the first task using Random Forest and 45.4% for the second task using BERT’s Algorithm. Our accuracies are the best among all the teams working on the same tasks, which deepens the effect that this paper resonates. The details of the IRMiDis 2021 data challenge have been discussed elaborately here, and we hope our paper marks its significance by virtue of its own merit. © 2021 Copyright for this paper by its authors.
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BACKGROUND: The lockdown linked with COVID-19 restrictions has been reported to have severe consequences at an emotional and cognitive level, this was especially true for vulnerable populations, such as the older adults. This study aims at exploring the effect of a blog-based intervention implemented during COVID lockdown to increase the perceived well-being and cognitive reserve (CR) of a sample of American older adults. METHODS: Forty-one participants (63% female), age range from 64 to 83, participated in a blog-based 5-week intervention. Their level of well-being as well as cognitive reserve were assessed before and after the intervention with specific scales. Participants were matched by age, gender and education level to a quasi-equivalent control group living in the same area who was tested on the same variables. RESULTS: Results showed a significant increase in both perceived well-being and CR in the intervention group. A significant difference was also found when comparing the intervention group to the matched controls.
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COVID-19 , Cognitive Reserve , Aged , Blogging , Brain , Communicable Disease Control , Female , Humans , MaleABSTRACT
Objective: To implement diverse virtual educational activities for students interested in Neurology. Background: The COVID-19 pandemic prevented our Student Interest Group in Neurology (SIGN) group from continuing regular in-person engagement and educational programs. We created educational opportunities and expanded outreach using innovative virtual platforms. Design/Methods: We developed three virtual educational programs: Bewitching Brain, a YouTube channel geared toward pre-graduate/pre-medical and first year medical students;a speaker series providing new information in the field of clinical and academic neurology;and a medical humanities journal club blog. We assessed engagement via numbers of subscribers and views (channel), surveys (speaker series), and quantity and content of comments (journal club). Results: YouTube channel subscribership is at 92 with 25 videos, and video views range from 10-170 (mean: 49). Attendance at our four speaker series lectures ranged from 2 to 8 with a paucity of post-survey follow-up, preventing quantitative analysis. However, we also used qualitative survey questions;for example, our “Neurological Aspects of COVID-19” lecture survey included questions regarding virtual medical learning. Responses encompassed themes of feeling “overwhelmed” and missing “in-person learning,” with planned adaptations including remote research involvement and virtual patient support. The medical humanities journal club generated interesting and in-depth aesthetic discussion and engagement from a small number of SIGN group members. Conclusions: We created diverse learning opportunities during the lockdown phase of the pandemic. As learning environments open, we are implementing in-person speaker series lectures and adjunct humanities journal club discussions with higher attendance and survey completions. Barriers included challenges reaching a wide audience with the channel, and difficulties with speaker series virtual discussion attendance and survey engagement. We foresee including M1 and M2 students in YouTube video development as well as collaborating with MCW student groups and SIGN groups nationally to expand our other programs.
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Twitter is deemed the most reliable and convenient microblogging platform for getting real-time news and information. During the COVID-19 pandemic, people are keen to share various information ranging from new cases, healthcare guidelines, medication, and vaccine news on Twitter. However, a major portion of the shared tweets is uninformative and misleading which may create mass panic. Hence, it is an important task to distinguish and label a COVID-19 tweet as informative or uninformative. Prior works mostly focused on various pretrained transformer models and different types of contextual feature extractors to address this task. However, most of the works applied these models one at a time and didn't employ any effective neural layer at the bottom to distill the tweet contexts effectively. Since a tweet may contain a multifarious context, therefore, representing a tweet using only one kind of feature extractor may not work well. To overcome this limitation, we present an approach that leverages an ensemble of various cutting-edge transformer models to capture the diverse contextual dimension of the tweets. We exploit the BERT, CTBERT, BERTweet, RoBERTa, and XLM-RoBERTa models in our proposed method. Next, we perform a pooling operation on those extracted embedding features to transform them into document embedding vectors. Then, we utilize a feed-forward neural architecture with a linear activation function for the classification task. To generate final prediction, we utilize the majority voting-driven ensemble technique. Experiments on WNUT-2020 COVID-19 English Tweet dataset manifested the efficacy of our method over other state-of-the-art methods. © 2022 IEEE.
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This science communication case study analyzes an online international co-taught course where students practiced blog article conceptualization and production covering a wide variety of science and technology related issues. Students had an international experience during the COVID-19 pandemic, and gained experience in communicating science and technology to intercultural audiences. Through student article reviews, course evaluations and project reflections students demonstrated an adoption of new science communication skills and some key examples of changing perspective on issues such as environment and technology. They also enjoyed the opportunity to learn about new cultures, reflect on their own, and bond over life experiences. Copyright © 2022 van Kempen, Kristiansen and Feldpausch-Parker.
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Aims: Australian medical students have historically had limited dedicated clinical education in dermatology. Recently, the COVID-19 pandemic has resulted in additional barriers to face-to-face clinical education. With the increasing usage of social media and web-based resources, Free Online Open Access Medical Education (FOAMeD) has emerged as a popular educational paradigm. The FOAMed movement promotes accessible, collaborative and contemporaneous clinical education, knowledge-sharing and communication in medicine. In this review, we explore the platforms, content and delivery modalities available in dermatology FOAMed for medical students. Methods: MEDLINE, Cochrane Library, Scopus and Social media platforms were searched with the following search terms: ?FOAMed?, ?FOAM? AND/OR ?Dermatology?, ?Skin disease?, ?Dermatological?, ?Dermatology education? AND/OR ?medical education?, ?medical student? to identify potential dermatology FOAMed resources for medical students. Additional FOAMed resources were identified through university and institution student resource lists, word of mouth and ancestry searching of identified FOAMed resources. Dermatology FOAMed resources were categorised according to platform, content media and delivery. Specific examples of dermatology FOAMed are discussed. Results: Dermatology FOAMed platforms identified could be grouped into six categories: social networking, media sharing networks, digital libraries, community blogs, blog comments and forums, and microblogging. Content media could be broadly classified into textual, visual, audio and combination delivery. Delivery of dermatology FOAMed encompassed (use a list/bullet point here): podcasts, videos, vodcasts, digital libraries, educational images, blog articles, memes, infographics, livestreams, host discussions, webinars, reels and games. Specific examples of dermatology FOAMed are discussed including (use another list here) the SpotDiagnosis (podcast), UE Open.Ed (video sharing network), @DocScribbles (Twitter), Sydney University Dermatology Society-SUDS (Facebook community group) and DontForgetTheBubbles (community blog). Conclusions: Dermatology FOAMed for medical students are widely available through multiple modalities. Learner satisfaction and clinical education outcomes are subject to further research.
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During recent crises like COVID-19, microblogging platforms have become popular channels for affected people seeking assistance such as medical supplies and rescue operations from emergency responders and the public. Despite this common practice, the affordances of microblogging services for help-seeking during crises that needs immediate attention are not well understood. To fill this gap, we analyzed 8K posts from COVID-19 patients or caregivers requesting urgent medical assistance on Weibo, the largest microblogging site in China. Our mixed-methods analyses suggest that existing microblogging functions need to be improved in multiple aspects to sufficiently facilitate help-seeking in emergencies, including capabilities of search and tracking requests, ease of use, and privacy protection. We also find that people tend to stick to certain well-established functions for publishing requests, even after better alternatives emerge. These findings have implications for designing microblogging tools to better support help requesting and responding during crises. © 2022 ACM.
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Background/Aims Patients with rheumatoid arthritis (RA) need support to understand and manage their condition. The COVID-19 pandemic rapidly transformed outpatient clinical consultations from face-to-face towards remote models. This increased the emphasis placed upon self-assessment of joints and disease activity, strengthening the need for patient education materials. We planned to develop a video to support patient research participants to monitor disease activity remotely using the REMORA app. We altered the video's scope and made it open access to meet the need created by changes in service delivery models. Methods A video demonstrating self-examination of tender and swollen joints in RA was co-produced with patients and the multi-disciplinary team. A nurse consultant introduces key concepts, (how to identify and examine tender and swollen joints, which joints to include, etc), coaches a patient through self-examination, and answers key questions. Materials co-produced to support implementation into practice include a joint count manikin and table, an advertising poster, and blogs. Collaboration with international research colleagues has led to the production of a version dubbed in German. Subtitles are available in German and Hindi. Online feedback was sought via a survey. Ethical approval was not required as all contributors acted as equal members of the research team. Results The 15-minute video, supporting materials and survey were uploaded to YouTube in February 2021 [tinyurl.com/REMORAvideo]. 1,000 hits were received in week one, reaching >12,500 after eight months. 20% of viewers are UK-based, 15% from the USA, 10% from India. 26% of views used English subtitles, 0.2% German, 0.1% Hindi. 124/125 people engaging with the 'like/dislike' function on YouTube, 'liked' the video. 48 people fed-back online (26 patients, 22 clinicians). Patient ages were: 18-35(5%), 36-55(62%), 56-75(29%), 76+(5%), the majority of whom were female (19/21[91%]). Before watching, 14/ 17(82%) patients rated themselves as 'poor'-'fair' at self-examination: after watching, the same number rated themselves as 'good'- 'excellent'. 19/21(90%) and 17/21(81%) patients respectively either somewhat or strongly agreed with the statements 'I now feel confident to self-examine for' 'tender' or 'swollen' joints. 19/21(90%) of patients and 13/17(77%) clinicians either somewhat or strongly agreed with the statement that 'the video fulfilled my expectations'. 18/21(86%) patients and 12/17(71%) clinicians would recommend the video. To date, several national organisations have engaged with the video. It supports the BSR ePROMS platform and national audit. The National Rheumatoid Arthritis Society plans to incorporate it into the 'Know your DAS app', and it will contribute to an NHSX playbook of digital best practice. Conclusion This co-produced training video for people with RA, originally intended to support a remote monitoring app, has been well-received, with much wider-reaching international impact than anticipated. This demonstrates the need for materials collaboratively designed with patients to support patient self-management of long-term conditions, in the digital era.
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Recent advances in social commerce and mobile technology have led to the emergence of new professions such as vlogging, blogging and virtual pop-up store owning. Starting initially as hobbies, the services provided by these ‘new professionals’ have become ubiquitous and are being used by customers from many different countries and backgrounds. This paper reports on a study that first explored the views and opinions of new professionals from several fields (using a qualitative approach), and then the views of their potential customers (a quantitative study informed by UTAUT2—the extended Unified Theory of Acceptance and Use of Technology). The results indicated that new professionals both create and co-create value with their customers, peers, and some existing, traditionally established professions. The results also indicated that the intended audience/customers of the new professional businesses had a positive perception of their long-term commercial sustainability. Customers’ intention to use the new professional services in the future were predicted mostly by the behavioral characteristics of hedonic motivation and habit. The research contributes by empirically investigating the value creation and co-creation processes in a context that is yet to attract academic interest. It proposes a value creation and co-creation framework that draws on the interactions of the main players.
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Microblogging platforms especially Twitter is considered as one of the prominent medium of getting user-generated information. Millions of tweets were posted daily during COVID-19 pandemic days and the rate increases gradually. Tweets include a wide range of information including healthcare information, recent cases, and vaccination updates. This information helps individuals stay informed about the situation and assists safety personnel in making decisions. Apart from these, large amounts of propaganda and misinformation have spread on Twitter during this period. The impact of this infodemic is multifarious. Therefore, it is considered a formidable task to determine whether a tweet related to COVID-19 is informative or uninformative. However, the noisy and nonformal nature of tweets makes it difficult to determine the tweets' informativeness. In this paper, we propose an approach that exploits the benefits of finetuned transformer models for informative tweet identification. Upon extracting features from pre-trained COVID-Twitter-BERT and RoBERTa models, we leverage the stacked embedding technique to combine them. The features are then fed to a BiLSTM module to learn the contextual dimension effectively. Finally, a simple feed-forward linear architecture is employed to obtain the predicted label. Experimental result on WNUT-2020 benchmark informative tweet detection dataset demonstrates the potency of our method over various state-of-the-art approaches. © 2021 IEEE.
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Study Objectives: Loperamide (LOP) is a safe, effective antidiarrheal medication available over-the-counter (OTC) for over 30 years with a maximum dose of 8 mg/day for adults. Intentional LOP abuse/misuse (ingesting 70-200 mg/day to self-treat opioid withdrawal symptoms or achieve euphoria) was first reported in online forums in 2005. Following a 2016 US Food and Drug Administration (FDA) Drug Safety Communication on the potential risk of cardiovascular adverse events with high doses of LOP, the OTC industry initiated a communications campaign (www.LoperamideSafety.org) to educate health professionals, including emergency medicine specialists, about LOP abuse/misuse awareness and prevention. Retrospective surveillance (eg, FDA Adverse Event Reporting System database and National Poison Data System) has traditionally been employed to track reports of drug abuse/misuse. We utilized modern online social listening technology to observe and analyze comments/conversations (posts) about LOP abuse/misuse on various websites and online social media platforms to gain earlier insight into potential LOP abuse/misuse. Methods: Utilizing the software tools Crimson Hexagon and Synthesio, we scanned thousands of publicly accessible user posts in online blogs, forums, and social networks – including major platforms such as Twitter, Facebook, YouTube, Reddit, and Forums – from January 2015 to March 2021 to observe posts about LOP abuse/misuse. Listening consisted of keyword-based scrapes of user-generated content using search terms including loperamide, Imodium, overdose, OD, get high, getting high, withdrawal, and related terms/phrases. Findings were analyzed and reported quarterly. Results: From January 2015 to March 2021, there were 27,213 user posts regarding LOP abuse/misuse among all observed online platforms. Annual post volume peaked in 2016 before declining in 2019/2020, consistent with the pattern of annual intentional exposure cases reported by the American Association of Poison Control Centers. Over 2015-2021, there was an average of 390 posts per month. Since May 2018, Reddit contained the majority of posts (70%), followed by Twitter (18%), YouTube (6%), Forums (4%), Facebook (<1%), and other sites (<1%). Reddit and Forums accounted for an increasing percentage of posts over time with a decrease for all other platforms. Posts primarily addressed the use of high-dose LOP for easing withdrawal symptoms (73%) or seeking euphoria (17%). Posts about risks and dangers of misuse/abuse were 16% of Reddit posts from Q2 2020 to Q1 2021, with a peak of 22% in Q2 2020. Spikes in posts coincided with key events, including journal article publications regarding effects of high doses (2,499 posts in May 2016 and 830 posts in January 2017) and FDA Drug Safety Communications regarding abuse/misuse of LOP (650 posts in June 2016 and 1,400 posts in January 2018). Post volume also appeared to increase in relation to US COVID-19 infection rates in 2020/2021 slightly. Conclusion: Online chatter about LOP abuse/misuse rose from 2015 to a peak in 2016 before declining in 2019/2020, consistent with the pattern of reported annual intentional exposure cases. While not a substitute for epidemiological surveillance, online social media listening is a useful adjunct surveillance strategy for earlier insight into potential LOP abuse/misuse by observing and analyzing online comments/conversations, sentiments and contexts. [Formula presented]