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1.
Journal of Clinical Oncology ; 40(6 SUPPL), 2022.
Article in English | EMBASE | ID: covidwho-1779703

ABSTRACT

Background: Caregiver burden has been intensified by the COVID-19 pandemic. The Carer Well-being Index is a global research study commissioned by Embracing Carers, a partnered initiative with nine global caregiving organizations. The study sought to explore and delineate the impact of the pandemic on the health and well-being of caregivers across the globe, including those caring for persons with cancer. Methods: The survey was conducted via online and phone methodologies in September and October 2020, with over 9,000 unpaid carers across 12 countries, including the United States and Canada. Unpaid carers were defined as those who care for someone with a long-term illness (e.g., cancer), physical disability (e.g., spinal cord injury), or cognitive/mental condition (e.g., Alzheimer's). The base sample size for cancer caregivers from the global surveyed population was n=1035. Statistically significant differences between cancer carers and non-cancer carers were evaluated using the Chi-square test with p ≤ 0.05. Results: 63% of all caregivers were women, with a 60/40 female to male split in the cancer carer group. While the average age of started caregiving was 37.2 years, and 39.0 in cancer carers, caregivers caring for someone with cancer were more likely than the average caregiver to be in the 60+ age group. Compared to non-cancer caregivers surveyed, a higher percentage of cancer caregivers became carers in the last year (26 vs 13% of non-cancer caregivers). Providing emotional support, managing doctor appointments, preparing meals, home maintenance and housekeeping, transportation, and giving/managing medications were more likely to be among cancer caregivers' primary responsibilities, compared to non-cancer caregivers. Cancer carers were significantly more likely than non-cancer carers to have reported negative impacts because of COVID on their emotional/mental, physical, and financial health, and paid work responsibilities. Overall, cancer caregivers were significantly more likely to report that COVID has made caregiving harder than non-cancer caregivers (71 vs 63%), and were more likely to report never receiving support from a variety of organizations, such as insurance organizations (71 vs. 66% non-cancer caregivers) and local/state government (73 vs. 66%). Of note, cancer carers were more likely to report a positive impact on the relationship with the person being cared for (61 vs. 56%). Conclusions: These results highlight the burdens that have been intensified for cancer carers. Actions are needed to help with health and well-being such as offering and promoting mental health services, respite care;providing financial support to take leaves from paid work, access to equipment and services such as housecleaning. By working together with health care providers, organizations, and government on these types of initiatives, the burden upon cancer caregivers can be lessened.

2.
Osteoarthritis and Cartilage ; 30:S403, 2022.
Article in English | EMBASE | ID: covidwho-1768343

ABSTRACT

Purpose: Knee Osteoarthritis (KOA) is a leading cause of physical disability worldwide. Individuals who suffer from KOA experience pain, reduced mobility, and lower quality of life. Considering the upward trend in KOA diagnoses, the economic burden of knee replacement, and the surgical backlog from COVID-19, the need for alternative conservative treatments is pressing. Bracing is an economical and accessible form of conservative treatment. Traditional KOA braces only offload one knee compartment. However, over 50% of the KOA population suffers from cartilage damage in multiple compartments. The Levitation™ “Tri-Compartment Offloader” (TCO) knee brace contains embedded liquid springs that provide flexion support and extension assist to simultaneously offload joint forces in all three knee compartments. Similar to the effect of weight loss, biomechanical studies have demonstrated that the TCO provides clinically relevant reductions in tibiofemoral and patellofemoral joint contact forces ranging between 30-50%. However, there is a need to validate whether the TCO improves real world outcomes in KOA patients. Therefore, the current objective is to examine the influence of a TCO brace on knee pain and function in a population suffering from KOA. Methods: Individuals with KOA who purchased the TCO are being enrolled in the ongoing study following informed consent (n=113). Participants receive 4 online surveys administered using Qualtrics (USA). The first survey is completed before brace wear commences (0-months), and follow-up surveys are scheduled after 1-month, 3-months and 9-months of TCO brace wear. The surveys contain validated questionnaires including the Visual Analog Scale (VAS) for pain, Knee Injury and Osteoarthritis Outcome Score (KOOS), EuroQol 5D-5L, International Physical Activity Questionnaire, Orthotics and Prosthetics Users Survey;as well as custom questionnaires to collect demographic information. This preliminary analysis includes 54 participants who completed the 1-month and 3-months surveys (mean age 55.7±9.1 yrs;43 male). Variables of interest include knee pain (VAS) and function (KOOS). Pain was assessed during four common activities: 1) walking on a flat surface (Flat Walking);2) rising from seated (Sit & Stand);3) going up and down stairs (Stairs);and 4) Squatting. A VAS pain score of 0 represents no pain, and 100 represents the worst pain imaginable. KOOS domains included: 1) Pain;2) Symptoms;3) function in activities of daily living (ADL);4) function in sport and recreation (S&R);and 5) knee-related quality of life (QoL). A KOOS score of 0 represents severe problems, and 100 represents no problems. Statistical analysis was conducted using SPSS (IBM, USA). Pain (VAS score) between timepoints was assessed using four one-way repeated measures ANOVAs with Bonferroni correction for multiple comparisons (α = 0.0125). Post-hoc analyses were used to compare timepoints. Effects of TCO use on knee function were assessed using Wilcoxon's signed-rank test with Bonferroni correction (α = 0.01). Results: Participants wore the TCO for an average of 5.1±3.4 hours/day, and 5.2±1.8 days/week at 1-month and 5.0±3.1 hours/day and 4.9±1.7 days/week at 3-months. One participant did not complete the 1-month survey. Further, two participants did not provide complete VAS responses (Table 1) and a number of participants did not provide answers to all KOOS domains (Table 2). Significant effects of TCO use on pain were observed during all activities (p<0.001) (Figure 1, Table 1). Post-hoc analyses indicated significantly decreased pain for all activities at 1-month (p <0.001) and 3-months (p-value range 0.001-0.01) compared to baseline (0-months). There were no significant differences in pain between 1-month and 3-months of TCO use (p-value range 0.318-1). The scores for all 5 domains of KOOS increased after 1-month and 3-months of TCO brace wear compared to baseline. TCO use resulted in a significant increase in ADL (0-1 months: p<0.001;0-3 months: p<0.001), Pain (0-1 months: p<0.001), and S&am ;R (0-1 months: p<0.002) (Figure 2, Table 2). [Formula presented] [Formula presented] [Formula presented] [Formula presented] Conclusions: This study demonstrates that the TCO brace significantly decreased knee pain for KOA patients when worn during common daily activities. The mean difference in pain scores after 1-month of TCO wear was greater than the minimally clinically important difference (-19.9mm) for all activities suggesting a clinically significant improvement in pain. These significant reductions in pain were maintained after 3-months of TCO wear, demonstrating continued pain management benefits at 3-months. This suggests that the TCO is an effective conservative treatment option over a moderate period of time. Brace usage data indicated good compliance and consistent duration of brace wear between 1-month and 3-months, which could be a result of the continued reduction in knee pain. An improvement in all 5 dimensions of KOOS was also observed, with significant improvements in Pain, ADL, and S&R after 1-month of wearing the TCO. These findings indicate that the Levitation™ TCO brace has a strong potential to manage pain and improve knee function for patients suffering from KOA. Future work includes continued data collection and investigating the effects of the TCO on pain and function in the KOA population over a longer time period.

3.
J Clin Med ; 11(6)2022 Mar 19.
Article in English | MEDLINE | ID: covidwho-1765750

ABSTRACT

Multiple sclerosis is a progressive demyelinating disease of the central nervous system that can lead to permanent disability and significantly impact the quality of life. The present study explores the relationship between neurological disability and disease symptoms, quality of life, and the level of sense of coherence, which is an important resource for coping with the disease. EDSS, GNDS, SOC-29, and MSIS-29 were used in the presented study. The study group consisted of 137 people diagnosed with multiple sclerosis. The study showed the correlation between most of the analyzed variables. Mood disability and fatigue were significant predictors of the sense of coherence and explained 34% of its variance. Physical disability and fatigue served as significant predictors of the physical aspect of quality of life, explaining 49% of its variance. Fatigue and sense of coherence were significant predictors of the psychological aspect of quality of life, explaining 47% of the variance. In studies on a group of people with multiple sclerosis, it is worth considering, in addition to the level of disability, also invisible symptoms, such as fatigue or mood disability, which are important for the quality of life and the level of resources. As this study suggests, a sense of coherence is a resource essential for the quality of life of people with disabilities.

4.
New Armenian Medical Journal ; 15(4):103-108, 2021.
Article in English | EMBASE | ID: covidwho-1647628

ABSTRACT

Reports on clinical cases of orphan pathologies, as autosomal recessive type of infantile malignant osteopetrosis, have a great practical importance for scholars. Osteopetrosis may already manifest itself in utero. In early childhood, there is a classic triad of symptoms: increased bone density and fragility, severe anemia. Diagnostics and allogeneic hematopoietic stem cell transplantation at the age of up to 1 year can be cured and significantly increase life expectancy. Bone marrow transplantation is only treatment that has been proven to significantly alter course of autosomal recessive type of osteopetrosis. Inspide of successful transplantation may or-thopaedic, dental problems and their vision rarely significantly improves, however haemopoietic potential is restored and the long term prognosis is favourable. Herein we report a case of patient diagnosed with osteopetrosis and underwent allogeneic hematopoietic stem cell transplantation, with no prior determination type of mutation. Complexity of case: late diagnosis autosomal recessive type of osteopetrosis (at 3.1 years), despite characteristic early clinical manifestations, a protracted preparatory period associated with search for an unrelated donor and COVID-19 pandemic, for allogeneic-hematopoietic stem cell transplantation performed at the age of 4.3 years. In resulting, was engraftment of bone marrow transplant, with restoration hematopoietic func-tion, but with preserved neurological and physical disabilities in a form of psychomotor develop-ment retardation. Allogeneic hematopoietic stem cell transplantation led to restoration hematopoietic function of the graft in this case of late diagnosis osteopetrosis.

5.
Biomedical and Pharmacology Journal ; 14(4):2063-2072, 2021.
Article in English | EMBASE | ID: covidwho-1634325

ABSTRACT

COVID-19, the unprecedented deadly pandemic has turned the world topsy-turvy. It has affected all the people like poor and rich, young and old, educated and uneducated, male and female with detrimental consequences. People who are in quarantine and/or lockdown are likely to develop a wide range of symptoms like psychological stress, irritability, anxiety, depression etc. Hence, this study was undertaken to assess the psychological effects of COVID-19 lockdown among adult population residing in Chennai, India. This study is a cross sectional descriptive study carried out in Chennai, India. A structured questionnaire was developed containing 25 questions related to the emotional disturbance, depression, self-concept, physical problems, cognitive changes and role performance and 7 questions related to the demographics. An online survey was conducted using a structured questionnaire using a non-probability snowball sampling technique. A total of 579 responses were received. The findings of the present study revealed that, among 579 respondents, more than half of the respondents 320(56.3%) were under severe psychological stress, 192(33.2%) respondents that is one third of the people had moderate psychological stress and remaining were having mild psychological stress. The study also revealed that there was a statistically significant association of psychological problems associated with demographic variables. Our Study revealed that people living in Chennai had severe psychological problem due to theCOVID-19 lockdown. This highlights the importance and immediate need for the development special intervention programmes for the people with psychological problems due to the COVID-19 lockdown.

6.
Cogent Medicine ; 8, 2021.
Article in English | EMBASE | ID: covidwho-1617068

ABSTRACT

Background: The COVID-19 pandemic disrupted the lives of children and adolescents by invading their families, peer groups and school, worsening their prospects and causing anxiety about the future. Due to the threat of COVDI-19, restrictions were imposed worldwide, forcing changes in daily life, social interactions, education and work. There is no doubt that these strict restrictions have contributed immensely to reducing the risk of SARS-CoV-2 virus spread, but at the same time had significantly affected the health of young people in all its dimensions. The main aim of this study is to present changes in health and health behaviours between 2018 and 2021. Method: Data from the Youth and COVID-19 survey conducted in the first quarter of 2021 by the Institute of Mother and Child in Warsaw among adolescents aged 11-17 years (n=1571) as well as data from the Health Behaviour in School-aged Children (HBSC) according to the 2018 survey conducted in the same age groups (n=7701) were analysed. So were analysed indicators of physical development, mental health, subjective complaints and health behaviour. The prevalence of the aforementioned indicators was compared between 2018 and 2021, overall, by gender and age using chi2 test. Results: A significant increase was observed in the percentage of overweight and obese adolescents (according to WHO criteria) evident in the older age groups (15 and 17 years) and the percentage of underweight boys;an increase in the percentage of adolescents negatively assessing their health and well-being (according to the WHO5 scale-score indicating depressive symptoms) in each age group and both genders;frequently experiencing physical and mental health problems-in both genders such as headache, stomach ache, backache, feeling depressed, nervousness, difficulty in falling asleep and dizziness;only in girls-tiredness;in older adolescents-headache, stomach ache, backache, feeling depressed, irritability, nervousness, difficulty in falling asleep and dizziness;in each age group-feeling depressed;only in the youngest-tiredness. There was a significant decrease in the percentage of adolescents undertaking moderate-to-intensive physical activity at the recommended level of 60 minutes per day in both genders and each age group. However, there were positive changes in dietary behaviour: an increase in the percentage of adolescents eating daily with family in each age group, eating vegetables daily in both sexes and each age group, and a decrease in the percentage of adolescents frequently drinking sugary drinks in both sexes and each age group. Furthermore, no change was observed in the rate of frequent consumption of fruit and vegetables. Conclusion: The adverse effects of the pandemic on health and well-being are progressing rapidly, so urgent action is needed to help mitigate the severe effects of the pandemic and safeguard the future of young people.

7.
European Journal of Integrative Medicine ; 48, 2021.
Article in English | EMBASE | ID: covidwho-1587776

ABSTRACT

Introduction: The Society for Integrative Oncology (SIO) Online Task Force was created in response to the challenges facing continuity of integrative oncology care resulting from the COVID-19 pandemic. The Task Force set out to guide integrative oncology practitioners in providing effective and safe online consultations and treatments for quality-of-life-concerns and symptom management. Online treatments include manual, acupuncture, movement, mind-body, herbal, and expressive art therapies. Methods: The SIO Online Practice Recommendations employed a four-phase consensus process: (1) literature review and discussion among an international panel of SIO members, identifying key elements essential in an integrative oncology visit;(2) development, testing, and refinement of a questionnaire defining challenges and strategies;(3) refinement input from integrative oncology experts from 19 countries;and (4) SIO Executive Committee review identifying the most high-priority challenges and strategies. Results: The SIO Online Practice Recommendations address ten challenges, providing practical suggestions for online treatment/consultation. These include overcoming unfamiliarity, addressing resistance among patients and healthcare practitioners to online consultation/treatment, exploring ethical and medical-legal aspects, solving technological issues, preparing the online treatment setting, starting the online treatment session, maintaining effective communication, promoting specific treatment effects, involving the caregiver, concluding the session, and ensuring continuity of care. Conclusions: The SIO Online Practice Recommendations are relevant for ensuring continuity of care beyond the present pandemic. They can be implemented for patients with limited accessibility to integrative oncology treatments due to geographic constraints, financial difficulties, physical disability, or an unsupportive caregiver. These recommendations require further study in practice settings. Keywords: Integrative oncology. Telemedicine. Practice guidelines. Supportive care. Doctor-patient communication

8.
BMC Res Notes ; 14(1): 233, 2021 Jun 14.
Article in English | MEDLINE | ID: covidwho-1269889

ABSTRACT

OBJECTIVE: The main aim of the study was to assess the impact of COVID-19 pandemic on athletes preparing for the Tokyo 2021 Paralympic Games during 1 month of lockdown in Poland. The study involved 166 athletes (106 male, 66 female), members of either the Polish Paralympic Committee or the Polish Sports Association for the Disabled'Start', two organizations responsible for managing and regulating sports played by persons with disabilities in Poland. RESULTS: Athletes with disabilities have been strongly affected by the pandemic and the resultant lockdown. The majority of respondents reported that they trained at home (88.6%), whereas 60.2% of athletes trained outdoors, and 12% suspended their training regimens altogether. Only 5.4% of athletes had some access to sport facilities. The athletes reduced their weekly training time by almost half (9.4 h/week vs. 5.3 h/week), a statistically significant difference (t = 16.261, p < 0.001).


Subject(s)
COVID-19 , Disabled Persons , Athletes , Communicable Disease Control , Female , Humans , Male , Pandemics , SARS-CoV-2 , Tokyo/epidemiology
9.
Disabil Health J ; 14(4): 101126, 2021 10.
Article in English | MEDLINE | ID: covidwho-1252659

ABSTRACT

BACKGROUND: People with a physical disability are more inactive than the general population. Due to the positive effects of physical activity (PA) on physical and mental health, maintaining a physically active lifestyle is important especially during challenging periods of life. OBJECTIVE: Explore whether people with a physical disability experienced changes in PA, health status, and psychological need satisfaction (autonomy, competence and relatedness) during the first wave of the COVID-19 pandemic in Norway. Further, explore whether changes in psychological need satisfaction were associated with changes in PA level and mental health. METHODS: Cross-sectional retrospective study using an online self-reported questionnaire after the first wave during the COVID-19 pandemic. RESULTS: Of the 298 participants with physical disabilities (AgeM = 49yr; 62% females; 66% using mobility aids), 66% reported decreased PA compared to the same period in the previous year, 45% reported declined health status due to increased pain and reduced physical functioning. Regarding psychological need satisfaction, it was primarily the change in need for autonomy and competence for PA that were associated with change in PA and mental health. CONCLUSIONS: Most of the participants indicated decreased PA and about half decreased Health status during the COVID-19 pandemic. Further, the results indicated that it is important to nurture the basic psychological needs of autonomy and competence for PA when aiming to maintain or increase PA levels and mental health for this population living under restrictions of a pandemic.


Subject(s)
COVID-19 , Disabled Persons , Cross-Sectional Studies , Exercise , Female , Humans , Male , Mental Health , Norway/epidemiology , Pandemics , Retrospective Studies , SARS-CoV-2
10.
Disabil Health J ; 14(3): 101073, 2021 07.
Article in English | MEDLINE | ID: covidwho-1086874

ABSTRACT

BACKGROUND: In February 2020, the Lebanese authorities announced the first Coronavirus 2019 (COVID-19) case. Since then, the cases increased significantly, but information on the public's psychological status and specifically individuals with physical disabilities is still limited. PURPOSE: The study aims to assess the psychological impact of the COVID-19 outbreak on Lebanese individuals with physical disabilities and study the associated factors. MATERIALS AND METHODS: This is a cross-sectional study involving 118 individuals with physical disabilities. Each filled out an online survey with three sections: a personal questionnaire, the Arabic versions of the Hopkins Symptom Checklist-25 and the Fear of COVID-19 scale. Data regarding participants' baseline characteristics, fear, anxiety, and depression were collected and analyzed using the Chi-square test and regressions models. RESULTS: Individuals with physical disabilities exhibited mild fear of COVID-19, with fear being correlated with age, educational level, and employment status. Furthermore, 22.9% of the population was found to be anxious, and 31.5% were depressed. Anxiety was associated with both marital status and employment status. Finally, depression was proved to be influenced by marital status, employment, and educational level. CONCLUSION: Results extracted showed that individuals with physical disabilities require substantial attention in order to manage their psychological state during pandemics.


Subject(s)
COVID-19 , Disabled Persons , Anxiety/epidemiology , Cross-Sectional Studies , Depression/epidemiology , Disease Outbreaks , Humans , SARS-CoV-2 , Stress, Psychological , Surveys and Questionnaires
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