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1.
Int J Environ Res Public Health ; 20(9)2023 05 01.
Article in English | MEDLINE | ID: covidwho-20237156

ABSTRACT

U.S.-Mexico border residents experience pervasive social and ecological stressors that contribute to a high burden of chronic disease. However, the border region is primarily composed of high-density Mexican-origin neighborhoods, a characteristic that is most commonly health-promoting. Understanding factors that contribute to border stress and resilience is essential to informing the effective design of community-level health promotion strategies. La Vida en La Frontera is a mixed-methods, participatory study designed to understand factors that may contribute to border resilience in San Luis, Arizona. The study's initial qualitative phase included interviews with 30 Mexican-origin adults exploring community perceptions of the border environment, cross-border ties, and health-related concepts. Border residents described the border as a Mexican enclave characterized by individuals with a common language and shared cultural values and perspectives. Positive characteristics related to living in proximity to Mexico included close extended family relationships, access to Mexican food and products, and access to more affordable health care and other services. Based on these findings, we co-designed the 9-item Border Resilience Scale that measures agreement with the psychosocial benefits of these border attributes. Pilot data with 60 residents suggest there are positive sociocultural attributes associated with living in border communities. Further research should test if they mitigate environmental stressors and contribute to a health-promoting environment for residents.


Subject(s)
Community-Based Participatory Research , Health Facilities , Adult , Humans , Arizona , Mexico , Environment , Mexican Americans
3.
Cien Saude Colet ; 28(5): 1501-1512, 2023 May.
Article in Portuguese, English | MEDLINE | ID: covidwho-2323073

ABSTRACT

This article describes the development of a participatory methodological study involving autistic people with varying levels of support needs in the design and validation of an instrument devised to assess the effects of social isolation during the COVID-19 pandemic and the strategies used to cope with the crisis. The development of the instrument involved the following stages: Definition of the domains to be assessed (researchers in consultation with experts and autistic people); Design of the instrument (researchers with the co-participation of autistic people); Validation of the instrument (by experts and autistic people, led by the researchers); and Final approval of the instrument (co-participation between researchers and autistic people). In addition to making the instrument more robust, the participation of autistic people in the design and application of the instrument reinforced the importance of strategies to include autistic people in research as both study participants and co-researchers.


Nesse contexto, o objetivo deste artigo é descrever o desenvolvimento de uma pesquisa, envolvendo pessoas autistas, com diferentes demandas de suporte. Trata-se de um estudo metodológico e participativo, com a construção e validação de um instrumento de coleta de dados. O instrumento em questão visou analisar os efeitos de um período de crise sociossanitária e as estratégias de enfrentamento utilizadas por pessoas autistas, sendo desenvolvido para utilização no período mais crítico do isolamento social relacionado à pandemia do COVID-19. A construção do instrumento seguiu as seguintes etapas com os respectivos envolvidos: Determinação dos domínios a serem avaliados (pesquisadoras com consulta e experts e autistas); Elaboração instrumento (pesquisadoras com coparticipação de autistas); Validação do instrumento (experts e pessoas autistas, com a condução das pesquisadoras); Aprovação final do instrumento (coparticipação das pesquisadoras e de pessoas autistas). A participação de pessoas autistas na elaboração do instrumento de coleta de dados e no planejamento de sua aplicação, além de fortalecer o instrumento, ilustra a importância de estratégias de inclusão também na condução de pesquisas científicas.


Subject(s)
Autistic Disorder , COVID-19 , Humans , Community-Based Participatory Research , Pandemics
4.
Can J Public Health ; 114(3): 378-388, 2023 06.
Article in English | MEDLINE | ID: covidwho-2278046

ABSTRACT

OBJECTIVE: Older Muslim immigrants experience multiple vulnerabilities living in Canada. This study explores the experiences of Muslim older adults during the COVID-19 pandemic to identify ways to build community resilience as part of a community-based participatory research partnership with a mosque in Edmonton, Alberta. METHODS: Using a mixed-methods approach, check-in surveys (n = 88) followed by semi-structured interviews (n = 16) were conducted to assess the impact of COVID-19 on older adults from the mosque congregation. Quantitative findings were reported through descriptive statistics, and thematic analysis guided the identification of key findings from the interviews using the socio-ecological model. RESULTS: Three major themes were identified in consultation with a Muslim community advisory committee: (a) triple jeopardy leading to loneliness, (b) decreased access to resources for connectivity, and (c) organizational struggles to provide support during the pandemic. The findings from the survey and interviews highlight various supports that were missing during the pandemic for this population. CONCLUSION: The COVID-19 pandemic exacerbated the challenges associated with aging in the Muslim population and contributed to further marginalization, with mosques being sites of support during times of crises. Policymakers and service providers must explore ways of engaging mosque-based support systems in meeting the needs of older Muslim adults during pandemics.


RéSUMé: OBJECTIF: Les immigrants musulmans âgés vivant au Canada sont confrontés à des vulnérabilités multiples. Cette étude explore les expériences des personnes âgées musulmanes durant la pandémie de COVID-19 afin d'identifier des moyens pour renforcer la résilience communautaire dans le cadre d'un partenariat de recherche participative communautaire (CBPR) avec une mosquée à Edmonton, en Alberta. MéTHODES: À l'aide d'une approche à méthodes mixtes, des enquêtes de contrôle (n = 88) suivies d'entretiens semi-dirigés (n = 16) ont été menés pour évaluer l'impact du COVID-19 sur les personnes âgées de la congrégation de la mosquée. Les résultats quantitatifs ont été rapportés au moyen de statistiques descriptives, tandis que l'analyse thématique a guidé l'identification des principaux résultats des entretiens à l'aide du modèle socio-écologique. RéSULTATS: Trois thèmes majeurs ont été identifiés en concertation avec un comité consultatif de la communauté musulmane : a) triple péril menant à la solitude, b) accès réduit aux ressources pour la connectivité, et c) luttes organisationnelles pour fournir un soutien pendant la pandémie. Les résultats de l'enquête et des entretiens mettent en évidence le manque d'aides diverses à cette population durant la pandémie. CONCLUSION: La pandémie de COVID-19 a exacerbé les défis associés au vieillissement de cette population et a contribué à une marginalisation supplémentaire, les mosquées étant des sites de soutien en temps de crise. Les décideurs politiques et les prestataires de services doivent explorer les moyens d'engager les systèmes d'aide basés dans les mosquées pour répondre aux besoins des adultes musulmans âgés pendant les pandémies.


Subject(s)
COVID-19 , Emigrants and Immigrants , Humans , Aged , Islam , Pandemics , Alberta/epidemiology , Community-Based Participatory Research , COVID-19/epidemiology
5.
Int J Environ Res Public Health ; 20(5)2023 02 23.
Article in English | MEDLINE | ID: covidwho-2277068

ABSTRACT

There has been increasing adoption and implementation of virtual healthcare in recent years, especially with COVID-19 impacting the world. As a result, virtual care initiatives may not undergo stringent quality control processes to ensure that they are appropriate to their context and meet sector needs. The two objectives of this study were to identify virtual care initiatives for older adults currently in use in Victoria and virtual care challenges that could be prioritised for further investigation and scale-up and to understand why certain virtual care initiatives and challenges are prioritised over others for investigation and scale-up. METHODS: This project used an Emerging Design approach. A survey of public health services in the state of Victoria in Australia was first carried out, followed by the co-production of research and healthcare priorities with key stakeholders in the areas of primary care, hospital care, consumer representation, research, and government. The survey was used to gather existing virtual care initiatives for older adults and any associated challenges. Co-production processes consisted of individual ratings of initiatives and group-based discussions to identify priority virtual care initiatives and challenges to be addressed for future scale-up. Stakeholders nominated their top three virtual initiatives following discussions. RESULTS: Telehealth was nominated as the highest priority initiative type for scaling up, with virtual emergency department models of care nominated as the highest priority within this category. Remote monitoring was voted as a top priority for further investigations. The top virtual care challenge was data sharing across services and settings, and the user-friendliness of virtual care platforms was nominated as the top priority for further investigation. CONCLUSIONS: Stakeholders prioritised public health virtual care initiatives that are easy to adopt and address needs that are perceived to be more immediate (acute more so than chronic care). Virtual care initiatives that incorporate more technology and integrated elements are valued, but more information is needed to inform their potential scale-up.


Subject(s)
COVID-19 , Telemedicine , Humans , Aged , Community-Based Participatory Research , Delivery of Health Care , Victoria
6.
Int J Environ Res Public Health ; 20(5)2023 02 28.
Article in English | MEDLINE | ID: covidwho-2262328

ABSTRACT

While the literature supports positive associations between nature and adolescent mental health, mechanisms are not well understood, and assessment of nature varies widely among existing studies. To partner with the most insightful informants, we enrolled eight adolescent participants from a conservation-informed summer volunteer program, applying qualitative photovoice methodology to understand their use of nature to relieve stress. Across five group sessions, participants identified four themes: (1) Nature shows us different aspects of beauty; (2) nature helps us relieve stressful experiences by balancing our senses; (3) nature gives us space to find solutions; and (4) we want to find time to enjoy nature. At the conclusion of the project, youth participants reported that the research experience was overwhelmingly positive, enlightening, and inspired appreciation of nature. We found that, while our participants unanimously reported that nature relieved their stress, prior to this project, they were not always intentional in seeking time in nature for this purpose. Through the photovoice process, these participants noted the usefulness of nature for stress relief. We conclude with recommendations for leveraging nature to decrease adolescent stress. Our findings are relevant for families, educators, students, healthcare professionals, and anyone who works with or cares for adolescents.


Subject(s)
Mental Health , Photography , Humans , Adolescent , Photography/methods , Adolescent Health , Problem Solving , Community-Based Participatory Research/methods
7.
Prev Chronic Dis ; 20: E12, 2023 03 09.
Article in English | MEDLINE | ID: covidwho-2261790

ABSTRACT

INTRODUCTION: Although the disproportionate impact of COVID-19 infection, hospitalization, and death rates on racial and ethnic minority communities in the US is known, information about how COVID-19 has affected these communities and how community context and perceptions can inform a better response to future health crises needs further exploration. To help achieve these objectives, we used a community-based participatory research approach to gain a better insight into African American, Native American, and Latinx communities. METHODS: From September through December 2020, we conducted 19 focus groups and recruited 142 participants. Participants were selected via a purposeful sampling technique. We used a phenomenology study design to conduct semistructured interviews, thematic analysis to code qualitative data, and descriptive statistics to summarize demographic data. RESULTS: Data analysis revealed the following 3 themes: 1) COVID-19 exacerbated mistrust, anxiety, and fear in racial and ethnic minority populations, affecting their mental health, 2) understanding sociocultural context is essential for emergency response, and 3) adapting communication strategies can help address community concerns. CONCLUSION: Amplifying the voices of people disproportionately affected by the COVID-19 pandemic can help to inform a better response to future health crises and ultimately reduce health inequity among racial and ethnic minority populations.


Subject(s)
COVID-19 , Community-Based Participatory Research , Humans , American Indian or Alaska Native , Black or African American , Community-Based Participatory Research/methods , COVID-19/epidemiology , Ethnicity , Hispanic or Latino , Minority Groups , Pandemics
8.
PLoS One ; 18(2): e0281765, 2023.
Article in English | MEDLINE | ID: covidwho-2274609

ABSTRACT

Research has shown that refugees in a foreign country often experience physical and mental health challenges upon resettlement (Ahmad et al., 2021; Salam et al., 2022). In Canada, refugee women experience a range of physical and mental barriers, including poor access to interpreter services and transportation, and a lack of accessible childcare, all of which can negatively affect their successful integration (Stirling Cameron et al., 2022). Social factors that support Syrian refugees to settle successfully in Canada have been unexplored systematically. This study examines these factors from the perspectives of Syrian refugee mothers living in the province of British Columbia (BC). Framed by principles of intersectionality and community-based participatory action research (PAR), the study draws on Syrian mothers' perspectives of social support in early, middle, and later phases of resettlement. A qualitative longitudinal design consisting of a sociodemographic survey, personal diaries, and in-depth interviews was used to gather information. Descriptive data were coded, and theme categories were assigned. Six themes emerged from data analysis: (1) Steps in the Migration Journey; (2) Pathways to Integrated Care; (3) Social Determinants of Refugee Health; (4) COVID-19 Pandemic Impacts and Ongoing Resettlement; (5) Strength-Based Capabilities of Syrian mothers; (6) Peer Research Assistant's Research (PRAs) Experience. Results from themes 5 and 6 are published separately. Data obtained in this study contribute to the development of support services that are culturally appropriate and accessible to refugee women living in BC. Our objectives are to promote the mental health and improve the quality of life of this female population, and to enable it to access healthcare services and resources in a timely manner.


Subject(s)
COVID-19 , Refugees , Humans , Female , Mothers/psychology , Refugees/psychology , Longitudinal Studies , Syria , Pandemics , Quality of Life , Qualitative Research , Community-Based Participatory Research , British Columbia
9.
J Community Health ; 48(4): 698-710, 2023 Aug.
Article in English | MEDLINE | ID: covidwho-2273443

ABSTRACT

The Centers for Disease Control and Prevention Minority HIV Research Initiative (MARI) funded 8 investigators in 2016 to develop HIV prevention and treatment interventions in highly affected communities. We describe MARI studies who used community-based participatory research methods to inform the development of interventions in Black/African American and Hispanic/Latinx communities focused on sexual minority men (SMM) or heterosexual populations. Each study implemented best practice strategies for engaging with communities, informing recruitment strategies, navigating through the impacts of COVID-19, and disseminating findings. Best practice strategies common to all MARI studies included establishing community advisory boards, engaging community members in all stages of HIV research, and integrating technology to sustain interventions during the COVID-19 pandemic. Implementing community-informed approaches is crucial to intervention uptake and long-term sustainability in communities of color. MARI investigators' research studies provide a framework for developing effective programs tailored to reducing HIV-related racial/ethnic disparities.


Subject(s)
Acquired Immunodeficiency Syndrome , COVID-19 , HIV Infections , Male , United States , Humans , Black or African American , Community-Based Participatory Research , Pandemics , Hispanic or Latino , Centers for Disease Control and Prevention, U.S. , HIV Infections/prevention & control
10.
J Health Commun ; 28(sup1): 2-6, 2023 Apr 07.
Article in English | MEDLINE | ID: covidwho-2257302

ABSTRACT

This methods commentary focuses on lessons learned from working with community data collectors on a refugee health disparities study during the COVID-19 pandemic. While there is a strong literature base for community health workers in refugee or migrant communities, there is less known about the procedural elements, challenges, and effectiveness of using community data collectors (CDCs) in research with refugee or migrant communities. Recognizing the cultural wealth and unique strengths of local stakeholders in the refugee community, the research team employed a robust collaborative approach by partnering with CDCs to design and administer the Telehealth and COVID-19 Knowledge, Attitudes, and Practices in New York Refugee Communities Survey. The study's success was largely due to the CDC partnership. This methods commentary highlights the utility of Community-Based Participatory Research as a culturally-responsive framework well-suited to exploring health disparities as part of a broader agenda of public health communication research.


Subject(s)
COVID-19 , Refugees , Humans , COVID-19/epidemiology , Community-Based Participatory Research , Pandemics , Community Health Workers
11.
Ann Fam Med ; (20 Suppl 1)2022 04 01.
Article in English | MEDLINE | ID: covidwho-2214695

ABSTRACT

Context: People are experts in their own health and need to be involved in health-related decisions, including decisions about what issues should be researched. Underserved communities, such as refugees and migrants, are often excluded from having a voice in relation to their priorities for health research. To avoid tokenistic participation, it is important to develop and test innovative methodologies that are culturally attuned and that can offer 'whole person' (affective, creative and cognitive) engagement. The Participatory Irish World Music Café, first developed in the context of the Irish Refugee Protection Programme in 2015, uses music and singing to develop inclusive, social and creative spaces to support social integration. It has been adapted during COVID-19 as an on-line café. While the café has sustained a strong community presence for five years, its potential adaptation and use to support research health prioritisation processes is unknown. Objective: Explore the use of an on-line, participatory Irish World Music Café to generate research priorities about migrant health in Ireland. Study Design: Participatory health research study co-designed with community partners, using a qualitative ethnographic and arts-based framework. Data from six 1.5 hour on-line cafes includes interviews, focus groups and arts-based documentation generated during the cafes. Analysis follows principles of thematic analysis. Setting or Dataset: Community-based participatory study in Ireland Population studied: Refugees, migrants, primary care providers, national health service planners, artists and academics working in the field of migrant health (n=25) Intervention/Instrument (for interventional studies): n/a Outcome Measures: n/a. Results: Analysis is underway and will describe participants' shared and differential experiences of (i) the research prioritisation sessions with particular attention to their experience of using music and other artistic practices (ii) cultural attunement and whole person engagement and (iii) generating identified research priorities. Conclusions: Findings will inform the evidence base about music as an arts-based method to support a new, inclusive participatory arts-based paradigm for migrants' involvement in research prioritisation. The work will be disseminated in Ireland and in the 53 Member States of the WHO Euro region.


Subject(s)
COVID-19 , Transients and Migrants , Humans , Ireland , Qualitative Research , State Medicine , Community-Based Participatory Research , Primary Health Care
12.
Saúde Soc ; 31(4): e220452pt, 2022.
Article in Portuguese | WHO COVID, LILACS (Americas) | ID: covidwho-2197566

ABSTRACT

Resumo A partir da experiência do projeto Respostas Indígenas à COVID-19 no Brasil: arranjos sociais e saúde global (PARI-c), na região do Alto Rio Negro (AM), buscamos refletir neste artigo sobre as possibilidades e implicações da produção colaborativa de conhecimento com pesquisadoras indígenas, levando em consideração a emergência sanitária, as imobilidades territoriais, as desigualdades sociais e as diferenças epistemológicas e de políticas ontológicas. A partir da ideia de Cestos de conhecimento, pensamos as formas e possibilidades dessa colaboração, à luz de discussões contemporâneas sobre processos de "descolonização" da saúde pública (global, planetária) e do conhecimento em saúde. A base empírica para este artigo é uma descrição da experiência metodológica, de produção de conhecimento, focada em duas faces: o campo e a escrita. Esse material nos permite tecer algumas considerações em torno da relevância e do sentido de formas de geração de "saberes híbridos", para lidar com contextos de crises globais ou sindemias. Estas formas, como veremos, atravessam o realinhamento das alianças e têm na escrita de mulheres um lugar especial de atenção.


Abstract From the experience of the project Indigenous Responses to COVID-19 in Brazil: social arrangements and global health (PARI-c), in the region of Alto Rio Negro (AM), we seek to reflect in this article on the possibilities and implications of collaborative knowledge production with indigenous researchers, taking into account the health emergency, territorial immobilities, social inequalities, and epistemological and ontological policy differences. From the idea of Baskets of knowledge, we think about the forms and possibilities of this collaboration, in the light of contemporary discussions on processes of "decolonization" of public health (global, planetary) and health knowledge. The empirical basis for this article is a description of the methodological experience of knowledge production, focused on two aspects: the field and writing. This material allows us to make some considerations around the relevance and meaning of ways of generating "hybrid knowledge", to deal with contexts of global crises or syndemics. These ways, as we shall see, cross the realignment of alliances and find a special focal point on women's writing.


Subject(s)
Humans , Male , Female , Health of Indigenous Peoples , Community-Based Participatory Research , Gender Identity , COVID-19 , Anthropology , Anthropology, Cultural
13.
J Health Care Poor Underserved ; 33(4S): 234-242, 2022.
Article in English | MEDLINE | ID: covidwho-2196783

ABSTRACT

The COVID-19 pandemic required collaboration to address vaccine hesitancy in populations of color. A large not-for-profit health system collaborated with a philanthropic organization and a technology company, using principles of community-based participatory research, to develop an outreach program aimed at increasing access to COVID-19 vaccines in two geographically distinct locations.


Subject(s)
COVID-19 , Community-Based Participatory Research , Humans , COVID-19 Vaccines , Pandemics , COVID-19/epidemiology , COVID-19/prevention & control , Population Groups
14.
Prog Community Health Partnersh ; 16(4): 551-561, 2022.
Article in English | MEDLINE | ID: covidwho-2196775

ABSTRACT

BACKGROUND: There remains critical need for community-based approaches to HIV prevention which center youth voices and needs. OBJECTIVES: We established an adolescent health working group (AHWG) to convene youth, parents, providers, and advocates in agenda-setting for interventions to increase pre-exposure prophylaxis uptake in Durham. METHODS: Our three study phases included six AHWG meetings from 2019 to 2020, youth-only meetings guided by a participatory engagement framework (Youth Generate and Organize), and interviews (n=13) and surveys with youth in the community (N=87). We also developed materials such as an AHWG mission statement, a list of themes and informational needs, and documented strategies about pivoting the project during the onset of the COVID-19 global pandemic.Lessons Learned/Conclusions: Engaging adults in youth-focused HIV prevention differs greatly to engaging youth themselves. Creating spaces to promote adolescent sexual Health requires trust building, breaking down sensitivities and stigma to, and flexibility to navigate both virtual and in-person spaces to do so.


Subject(s)
COVID-19 , HIV Infections , Adult , Adolescent , Humans , Community-Based Participatory Research , Adolescent Health , Sexual Behavior , HIV Infections/prevention & control
15.
BMC Health Serv Res ; 23(1): 29, 2023 Jan 13.
Article in English | MEDLINE | ID: covidwho-2196263

ABSTRACT

BACKGROUND: Since the onset of the COVID-19 pandemic in March 2020 in Canada, the availability of sexual health services including sexually transmitted and blood-borne infection (STBBI) testing has been negatively impacted in the province of Ontario due to their designation as "non-essential" health services. As a result, many individuals wanting to access sexual healthcare continued to have unmet sexual health needs throughout the pandemic. In response to this, sexual health service providers have adopted alternative models of testing, such as virtual interventions and self-sampling/testing. Our objective was to investigate service providers' experiences of disruptions to STBBI testing during the COVID-19 pandemic in Ontario, Canada, and their acceptability of alternative testing services. METHODS: Between October 2020-February 2021, we conducted semi-structured virtual focus groups (3) and in-depth interviews (11) with a diverse group of sexual health service providers (n = 18) including frontline workers, public health workers, sexual health nurses, physicians, and sexual health educators across Ontario. As part of a larger community-based research study, data collection and analysis were led by three Peer Researchers and a Community Advisory Board was consulted throughout the research process. Transcripts were transcribed verbatim and analysed with NVivo software following grounded theory. RESULTS: Service providers identified the reallocation of public health resources and staff toward COVID-19 management, and closures, reduced hours, and lower in-person capacities at sexual health clinics as the causes for a sharp decline in access to sexual health testing services. Virtual and self-sampling interventions for STBBI testing were adopted to increase service capacity while reducing risks of COVID-19 transmission. Participants suggested that alternative models of testing were more convenient, accessible, safe, comfortable, cost-effective, and less onerous compared to traditional clinic-based models, and that they helped fill the gaps in testing caused by the pandemic. CONCLUSIONS: Acceptability of virtual and self-sampling interventions for STBBI testing was high among service providers, and their lived experiences of implementing such services demonstrated their feasibility in the context of Ontario. There is a need to approach sexual health services as an essential part of healthcare and to sustain sexual health services that meet the needs of diverse individuals.


Subject(s)
Blood-Borne Infections , COVID-19 , Delivery of Health Care , Humans , COVID-19/diagnosis , COVID-19/epidemiology , Ontario/epidemiology , Pandemics , Sexual Behavior , Sexual Health , Community-Based Participatory Research
16.
BMC Med Res Methodol ; 22(1): 330, 2022 12 22.
Article in English | MEDLINE | ID: covidwho-2196052

ABSTRACT

BACKGROUND: Identifying mechanisms to maintain CBPR studies during an infectious disease pandemic is vital. The current paper describes the changes in methods and processes conducted within a CBPR mixed-methods study to a virtual setting during the novel coronavirus (COVID-19) pandemic. METHOD: The DC Community Organizing for Optimal Culinary Knowledge study with Heart (DC COOKS with Heart) was designed to assess the feasibility of a dietary behavior intervention among African-American adults that are at risk for cardiovascular disease (CVD). The study is under the umbrella of an ongoing CBPR study and community advisory board that facilitates community involvement in study design and promotes ongoing engagement with community members and leaders. The study population for D.C. COOKS with Heart consists of adult African-American individuals who live in two low-resource neighborhoods in Washington, D.C., which were impacted disproportionately by COVID. Eligible study participants who previously participated in the DC CHOC community-based studies were contacted to participate in Phase 1. The quantitative part of the mixed-methods included survey data collection. RESULTS: Due to the pandemic, the mode of data collection for surveys changed from self-administered face-to-face to internet-based. All virtual study procedures were conducted between March and April, 2021. Anticipated benefits of the virtual setting included participant safety during the pandemic, ease of logistics for participants. Anticipated challenges included administration of electronic devices to participants, research team training, and potential threats to established trust related to the privacy and confidentiality of participants. CONCLUSION: The transition to a virtual setting for study procedures in a mixed-methods study was conducted successfully in terms of recruitment, retention of participants, and training of research team members. The virtual transition required established and ongoing engagement through the community advisory board and CBPR practices, institutional support through virtual research policies, collaborations with information technology-based teams, and equipment administration for the study. TRIALS REGISTRATION: NCT04305431 . Registered on March 12, 2020.


Subject(s)
COVID-19 , Cardiovascular Diseases , Humans , Adult , Community-Based Participatory Research/methods , COVID-19/epidemiology , Pandemics , Black or African American , Surveys and Questionnaires , Diet
17.
Int J Environ Res Public Health ; 19(23)2022 11 26.
Article in English | MEDLINE | ID: covidwho-2123675

ABSTRACT

BACKGROUND: Plasmodium knowlesi malaria is a zoonotic infection that affects rural communities in South East Asia. Although the epidemiology of the disease has been extensively researched, the voices of individuals within affected communities often go unheard. Here, we describe a study that explores the importance of gatekeepers in conducting research among rural communities, their perspectives on the challenges encountered when attempting to avoid malaria infection, and their views on participatory research. METHODS: Between 1 November 2021 and 28 February 2022, we conducted a study in Kudat district, Sabah, using a multi-method design. All participants consented to the study, which included health care workers (HCWs) (n = 5), community leaders (n = 8), and faith leaders (n = 1). We conducted interviews, transect walks, and observations with gatekeepers to ensure data trustworthiness. All interviews were conducted in the Sabah Malay dialect. The sessions were audio- and video-recorded, transcribed into English and analyzed using thematic analysis. RESULTS: Between 2017 and 2021, the number of cases of P. knowlesi malaria detected in humans ranged from 35 to 87 in villages under the care of the Lotong primary health care clinic. The challenges in controlling malaria include social norms, lifestyles, socioeconomic factors, environmental factors, and limitations of basic resources. Critical discussions regarding participation with the gatekeepers identified that face-to-face interviews were preferable to online discussions, and influenced willingness to participate in future research. CONCLUSION: This study was conducted among village gatekeepers during the COVID-19 pandemic and generated information to drive methodological changes, opening up new ideas by sharing perspectives on challenges in P. knowlesi malaria control among vulnerable communities. The study generated trust in the community and expanded knowledge regarding participation that is critical for future community-based studies.


Subject(s)
COVID-19 , Malaria , Plasmodium knowlesi , Humans , Rural Population , Community-Based Participatory Research , Pandemics , COVID-19/epidemiology , Malaria/epidemiology , Malaysia/epidemiology
18.
Int J Environ Res Public Health ; 19(20)2022 Oct 17.
Article in English | MEDLINE | ID: covidwho-2071474

ABSTRACT

BACKGROUND: While a number of population preventive measures for COVID-19 exist that help to decrease the spread of the virus in the community, there are still many areas in preventative efforts that need improvement or refinement, particularly as new strains of the virus develop. Some of the key issues currently include incorrect and/or inconsistent use of face masks, low acceptance of early screening or vaccination for COVID-19, vaccine hesitance, and misinformation. This is particularly the case in some vulnerable populations, such as older people with chronic illnesses, ethnic minorities who may not speak the mainstream language well and children. The current protocol introduces a large programme of research through five interrelated studies that all focus on social and behavioural interventions to improve different aspects of community-related preventative indicators. Hence, the specific objectives of the overall programme are to (1) increase early testing for COVID-19 and promote the uptake of COVID-19 vaccines in the community (Study 1); (2) increase COVID-19-related health literacy and vaccine literacy and promote improved preventative measures in minority ethnic groups, chronically ill populations and caregivers (Study 2); (3) strengthen the public's motivation to stay at home and avoid nonessential high-risk activities (Study 3); (4) decrease COVID-19 vaccine hesitancy (Study 4); and (5) enhance the adherence to COVID-19-related hygiene practices and the uptake of early testing in school children (Study 5). METHODS: We will utilise a community-based participatory research (CBPR) approach in the proposed studies. All studies will incorporate an intervention development phase in conjunction with key community stakeholders, a feasibility study and an execution stage. A variety of self-reported and objective-based measures will be used to assess various outcomes, based on the focus of each study, in both the short- and long-term, including, for example, the 8-item self-reported eHealth Literacy Scale (eHEAL) and objective measures such as vaccine uptake. DISCUSSION: Theory-driven interventions will address each study's focus (e.g., social distancing, promotion of vaccine uptake, eHealth education, preventive measures and early detection). Improvements are expected to be seen in the outcomes of vulnerable and high-risk groups. Decreased infection rates are expected due to improved preventative behaviours and increased vaccine uptake. Long-term sustainability of the approach will be achieved through the CBPR model. The publication of this protocol can assist not only in sharing a large-scale and complex community-based design, but will also allow all to learn from this, so that we will have better insight in the future whether sharing of study designs can elicit timely research initiatives.


Subject(s)
COVID-19 , Vaccines , Child , Humans , Aged , SARS-CoV-2 , COVID-19/epidemiology , COVID-19/prevention & control , Community-Based Participatory Research , COVID-19 Vaccines , Hong Kong/epidemiology , COVID-19 Testing , Chronic Disease
20.
Transl Behav Med ; 12(9): 919-926, 2022 10 07.
Article in English | MEDLINE | ID: covidwho-2062985

ABSTRACT

The COVID-19 pandemic has exacerbated disparities in mental health treatment for people of color in the USA. Meeting the needs of those most burdened by this disparity will require swift and tactical action in partnership with these communities. The purpose of this paper is to describe how a community-based participatory research approach was employed to assess the priorities and needs of four communities of color (African immigrant, Hispanic/Latino, Black/African American, and Pacific Islander) in a major U.S. city. A brief quantitative survey devised jointly by community leaders and the research team was deployed to community members (N = 59) in the fall of 2020. The most endorsed mental health issues across the communities were excessive worry (51%) and stress regarding COVID-19, racism, and immigration policies (49%). The most endorsed physical health concerns included sleep difficulties (44%), headaches, and backaches (each 39%). Physical symptoms predicted the endorsement of a mental health issue above and beyond COVID-19-related hardships, multiplying the odds of reporting an issue by 1.73 per physical health concern endorsed. Based on these findings, the community-research team conceptualized and proposed an evidence-based, effectiveness-implementation hybrid type-2 intervention approach for chronic worry and daily stress. This paper highlights detail on how the community-research team arrived at the proposed multilevel intervention that addresses community-stated barriers to mental health treatment (e.g., preferring trusted health workers to deliver emotional health treatments) and considers the burden of the additional stressful context of COVID-19.


Diverse community members and university researchers collaborated on the development of an equitable intervention approach for community members' mental health needs.


Subject(s)
COVID-19 , Emigrants and Immigrants , Community-Based Participatory Research , Humans , Mental Health , Pandemics , United States/epidemiology
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