Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort.
J Autism Dev Disord
; 51(10): 3766-3773, 2021 Oct.
Article
in English
| MEDLINE | ID: covidwho-1002120
ABSTRACT
The impact of the 2019 coronavirus pandemic (COVID-19) in the United States is unprecedented, with unknown implications for the autism community. We surveyed 3502 parents/caregivers of individuals with an autism spectrum disorder (ASD) enrolled in Simons Powering Autism Research for Knowledge (SPARK) and found that most individuals with ASD experienced significant, ongoing disruptions to therapies. While some services were adapted to telehealth format, most participants were not receiving such services at follow-up, and those who were reported minimal benefit. Children under age five had the most severely disrupted services and lowest reported benefit of telehealth adaptation. Caregivers also reported worsening ASD symptoms and moderate family distress. Strategies to support the ASD community should be immediately developed and implemented.
Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Autistic Disorder
/
Autism Spectrum Disorder
/
COVID-19
Type of study:
Cohort study
/
Experimental Studies
/
Observational study
/
Prognostic study
/
Qualitative research
Limits:
Child
/
Humans
Country/Region as subject:
North America
Language:
English
Journal:
J Autism Dev Disord
Year:
2021
Document Type:
Article
Affiliation country:
S10803-020-04816-6
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