Unmasked: an insight into three patients' rare disease experiences during the COVID-19 pandemic.
Orphanet J Rare Dis
; 16(1): 88, 2021 02 26.
Article
in English
| MEDLINE | ID: covidwho-1105721
ABSTRACT
This article describes my reflections of speaking with three patients and their families living with mastocytosis, who I was introduced to through the UK Mastocytosis Support Group. I discuss the various ways in which the condition affects their day-to-day lives and how this has changed during the Covid-19 pandemic. I have tried to give an insight into the particular difficulties that this patient group faces, both during and before the pandemic, whilst also considering how these challenges may resonate more widely with other patient groups in the rare disease community. Pseudonyms are used throughout to protect patient anonymity.
Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Mastocytosis
/
COVID-19
Type of study:
Experimental Studies
/
Prognostic study
/
Qualitative research
/
Randomized controlled trials
Topics:
Long Covid
Limits:
Adult
/
Female
/
Humans
Language:
English
Journal:
Orphanet J Rare Dis
Journal subject:
Medicine
Year:
2021
Document Type:
Article
Affiliation country:
S13023-021-01734-3
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