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The Long Shadow: Collateral Impact and Finding Resilience Amidst a Global Pandemic Pediatric Palliative Care Social Work During COVID-19.
Jonas, Danielle Faye; Drouin, Kristin; Greenman, Jennifer; Klein, Victoria; Scanlon, Caitlin; Frechette, Eleanor; Cramer, Lauren; Eagan, Arielle; Rusch, Rachel; Joselow, Marsha; Purol, Nicholas.
  • Jonas DF; New York University, New York, New York, USA.
  • Drouin K; Nemours A.I. duPont Hospital for Children, Wilmington, Delaware, USA.
  • Greenman J; Division of Comfort and Palliative Care, Children's Hospital Los Angeles, Los Angeles, California, USA.
  • Klein V; Seattle Children's Hospital, Seattle, Washington, USA.
  • Scanlon C; Pediatric Palliative Care Team, Riley Hospital For Children, Indiana University Health, Indianapolis, Indiana, USA.
  • Frechette E; Boston Children's Hospital, Boston, Massachusetts, USA.
  • Cramer L; Pediatric Advanced Care Team, Boston Children's Hospital and Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
  • Eagan A; Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
  • Rusch R; The KonTerra Group, Washington, District of Columbia, USA.
  • Joselow M; Amwell Medical Group, Boston, Massachusetts, USA.
  • Purol N; Division of Comfort and Palliative Care, Children's Hospital Los Angeles, Los Angeles, California, USA.
J Soc Work End Life Palliat Care ; 17(2-3): 218-236, 2021.
Article in English | MEDLINE | ID: covidwho-1135780
ABSTRACT
This manuscript illuminates the nuanced ways in which the COVID-19 pandemic has impacted the pediatric palliative care social work role and clinical care in caring for children with life-limiting illnesses and their families throughout the country. The authors discuss memorable moments, logistical impacts, telehealth usage, decision-making experiences, end of life care, bereavement practices, specialized interventions, and self-care. The paper concludes with lessons learned and practical recommendations for the future.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Palliative Care / Quality of Life / Child Welfare / Social Workers / COVID-19 Type of study: Experimental Studies / Prognostic study / Qualitative research Topics: Long Covid Limits: Child / Humans Language: English Journal: J Soc Work End Life Palliat Care Journal subject: Social Sciences Year: 2021 Document Type: Article Affiliation country: 15524256.2021.1894312

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Palliative Care / Quality of Life / Child Welfare / Social Workers / COVID-19 Type of study: Experimental Studies / Prognostic study / Qualitative research Topics: Long Covid Limits: Child / Humans Language: English Journal: J Soc Work End Life Palliat Care Journal subject: Social Sciences Year: 2021 Document Type: Article Affiliation country: 15524256.2021.1894312