Patient and family perceptions of telehealth as part of the cystic fibrosis care model during COVID-19.
J Cyst Fibros
; 20(3): e23-e28, 2021 05.
Article
in English
| MEDLINE | ID: covidwho-1155520
ABSTRACT
BACKGROUND:
Cystic Fibrosis (CF) is a chronic multi-system disease best cared for at Care centers with routine monitoring by interdisciplinary teams. Previously, remote home monitoring technology has been explored to augment in-person care. During the COVID-19 pandemic, traditional in-person care was limited and CF centers rapidly adapted to a telehealth delivery model. The purpose of this study was to understand how people with CF (PwCF) and families of PwCF experienced the shift to telehealthcare delivery.METHODS:
This was a cross-sectional survey-based study conducted in 11 CF Centers. Two surveys were designed (one for adult PwCF and one for parents/guardians of PwCF) by participating CF center members with patient and family partner input. Surveys were disseminated electronically via email/text to all patients who completed a telehealth visit, and data were collected on secure Google Forms.RESULTS:
Respondents rated their telehealth experiences as positive. Most were highly satisfied with their telehealth visit (77% adult, 72% pediatric) and found the visits to be highly convenient (85% for all surveyed). A majority of patients reported they had adequate time during the visit and had all questions and concerns addressed. Importantly, we also identified concerns regarding lack of in-person assessments including pulmonary function testing (PFT) and throat/sputum culture.CONCLUSION:
Telehealth was a feasible and well-accepted mechanism for delivering care in a chronic CF care model during the COVID-19 pandemic and may be useful in the post-pandemic era. Further work is needed to understand the impact of telehealth on patient outcomes, healthcare utilization and associated cost.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Attitude
/
Family
/
Patient Satisfaction
/
Telemedicine
/
Cystic Fibrosis
/
COVID-19
Type of study:
Observational study
/
Qualitative research
/
Randomized controlled trials
Limits:
Adult
/
Child
/
Humans
Country/Region as subject:
North America
Language:
English
Journal:
J Cyst Fibros
Year:
2021
Document Type:
Article
Affiliation country:
J.jcf.2021.03.009
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