A Pilot Study Delivering Physiotherapy Support for Rett Syndrome Using a Telehealth Framework Suitable for COVID-19 Lockdown.
Dev Neurorehabil
; 24(6): 429-434, 2021 Aug.
Article
in English
| MEDLINE | ID: covidwho-1185553
ABSTRACT
Background:
Rett syndrome (RTT) is a genetically caused neurodevelopmental disorder associated with severe disability. We assessed the feasibility of a telehealth program supporting gross motor skills in RTT.Methods:
Five girls with RTT were assessed and a home-based exercise program developed in response to functional goals. Families then participated in monthly Skype sessions for 6 months, guided by a physiotherapist to monitor progress and adjust the program as necessary. Goal Attainment Scaling was used to evaluate progress and a parental satisfaction questionnaire was administered.Results:
Four goals were established for each participant and progress was greater than would be expected in 16 of 20 goals. Parents evaluated the program as feasible and useful for their daughters.Discussion:
A telehealth model of home-based intervention supported individuals with RTT to achieve gross motor skills and was found to be feasible. This model is important at present times during COVID-19 outbreak and lockdown.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Rett Syndrome
/
Telemedicine
/
Motor Skills Disorders
/
Exercise Therapy
/
Physical Distancing
/
COVID-19
Type of study:
Experimental Studies
/
Observational study
Topics:
Long Covid
Limits:
Child, preschool
/
Female
/
Humans
Language:
English
Journal:
Dev Neurorehabil
Journal subject:
Neurology
/
Pediatrics
/
Rehabilitation
Year:
2021
Document Type:
Article
Affiliation country:
17518423.2021.1914762
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