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The potential dangers of not understanding COVID-19 public health restrictions in dementia: "It's a groundhog day - every single day she does not understand why she can't go out for a walk".
Giebel, Clarissa; Hanna, Kerry; Rajagopal, Manoj; Komuravelli, Aravind; Cannon, Jacqueline; Shenton, Justine; Eley, Ruth; Gaughan, Anna; Callaghan, Steve; Tetlow, Hilary; Limbert, Stan; Whittington, Rosie; Rogers, Carol; Ward, Kym; Shaw, Lisa; Butchard, Sarah; Gabbay, Mark.
  • Giebel C; Department of Primary Care & Mental Health, University of Liverpool, Brownlow Street, Liverpool, L69 3GL, UK. Clarissa.giebel@liverpool.ac.uk.
  • Hanna K; NIHR ARC NWC, Liverpool, UK. Clarissa.giebel@liverpool.ac.uk.
  • Rajagopal M; Department of Primary Care & Mental Health, University of Liverpool, Brownlow Street, Liverpool, L69 3GL, UK.
  • Komuravelli A; Lancashire and South Cumbria NHS Trust, Preston, UK.
  • Cannon J; North West Boroughs NHS Trust, Warrington, UK.
  • Shenton J; Lewy Body Society, Wigan, UK.
  • Eley R; Sefton Older People's Forum, Liverpool, UK.
  • Gaughan A; Liverpool Dementia Action Alliance, Liverpool, UK.
  • Callaghan S; Together In Dementia Everyday (TIDE), Liverpool, UK.
  • Tetlow H; EQE Health, Liverpool, UK.
  • Limbert S; SURF Liverpool, Liverpool, UK.
  • Whittington R; NIHR ARC NWC, Liverpool, UK.
  • Rogers C; Me2U Day Care Centre, Liverpool, UK.
  • Ward K; National Museums Liverpool, Liverpool, UK.
  • Shaw L; The Brain Charity, Liverpool, UK.
  • Butchard S; Department of Modern Languages and Cultures, University of Liverpool, Liverpool, UK.
  • Gabbay M; Department of Primary Care & Mental Health, University of Liverpool, Brownlow Street, Liverpool, L69 3GL, UK.
BMC Public Health ; 21(1): 762, 2021 04 20.
Article in English | MEDLINE | ID: covidwho-1195916
Semantic information from SemMedBD (by NLM)
1. Cognition Disorders PROCESS_OF Persons
Subject
Cognition Disorders
Predicate
PROCESS_OF
Object
Persons
2. Caregiver DIAGNOSES Dementia
Subject
Caregiver
Predicate
DIAGNOSES
Object
Dementia
3. Cognitive disability PROCESS_OF Persons
Subject
Cognitive disability
Predicate
PROCESS_OF
Object
Persons
4. Cognition Disorders PROCESS_OF Persons
Subject
Cognition Disorders
Predicate
PROCESS_OF
Object
Persons
5. Caregiver DIAGNOSES Dementia
Subject
Caregiver
Predicate
DIAGNOSES
Object
Dementia
6. Cognitive disability PROCESS_OF Persons
Subject
Cognitive disability
Predicate
PROCESS_OF
Object
Persons
ABSTRACT

BACKGROUND:

Sudden public health restrictions can be difficult to comprehend for people with cognitive deficits. However, these are even more important for them to adhere to due to their increased levels of vulnerability, particularly to COVID-19. With a lack of previous evidence, we explored the understanding and changes in adherence to COVID-19 public health restrictions over time in people living with dementia (PLWD).

METHODS:

Unpaid carers and PLWD were interviewed over the phone in April 2020, shortly after the nationwide UK lockdown, with a proportion followed up from 24th June to 10th July. Participants were recruited via social care and third sector organisations across the UK, and via social media.

FINDINGS:

A total of 70 interviews (50 baseline, 20 follow-up) were completed with unpaid carers and PLWD. Five themes emerged Confusion and limited comprehension; Frustration and burden; Putting oneself in danger; Adherence to restrictions in wider society; (Un) changed perceptions. Most carers reported limited to no understanding of the public health measures in PLWD, causing distress and frustration for both the carer and the PLWD. Due to the lack of understanding, some PLWD put themselves in dangerous situations without adhering to the restrictions. PLWD with cognitive capacity who participated understood the measures and adhered to these.

DISCUSSION:

In light of the new second wave of the pandemic, public health measures need to be simpler for PLWD to avoid unwilful non-adherence. Society also needs to be more adaptive to the needs of people with cognitive disabilities more widely, as blanket rules cause distress to the lives of those affected by dementia.
Subject(s)

Full text: Available Collection: International databases Database: MEDLINE Main subject: Communicable Disease Control / Dementia / Comprehension / COVID-19 Type of study: Qualitative research Limits: Female / Humans Country/Region as subject: Europa Language: English Journal: BMC Public Health Journal subject: Public Health Year: 2021 Document Type: Article Affiliation country: S12889-021-10815-8

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Communicable Disease Control / Dementia / Comprehension / COVID-19 Type of study: Qualitative research Limits: Female / Humans Country/Region as subject: Europa Language: English Journal: BMC Public Health Journal subject: Public Health Year: 2021 Document Type: Article Affiliation country: S12889-021-10815-8