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Healthcare Delivery and Huntington's Disease During the Time of COVID-19.
Pfalzer, Anna C; Hale, Lisa M; Huitz, Elizabeth; Buchanan, Danielle A; Brown, Brittany K; Moroz, Sarah; Rouleau, Renee M; Hay, Kaitlyn R; Hoadley, Jennifer; Laird, Amy; Ciriegio, Abagail E; Watson, Kelly H; Jones, Maile T; Lin, Ya-Chen; Kang, Hakmook; Riordan, Heather; Isaacs, David A; McDonell, Katherine E; Compas, Bruce E; Claassen, Daniel O.
  • Pfalzer AC; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Hale LM; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Huitz E; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Buchanan DA; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Brown BK; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Moroz S; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Rouleau RM; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Hay KR; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Hoadley J; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Laird A; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Ciriegio AE; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Watson KH; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Jones MT; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Lin YC; Vanderbilt University Medical Center, Vanderbilt University, Nashville, TN, USA.
  • Kang H; Vanderbilt University Medical Center, Vanderbilt University, Nashville, TN, USA.
  • Riordan H; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Isaacs DA; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • McDonell KE; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Compas BE; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Claassen DO; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
J Huntingtons Dis ; 10(2): 313-322, 2021.
Article in English | MEDLINE | ID: covidwho-1195998
ABSTRACT

BACKGROUND:

Safer-at-home orders during the COVID-19 pandemic altered the structure of clinical care for Huntington's disease (HD) patients. This shift provided an opportunity to identify limitations in the current healthcare infrastructure and how these may impact the health and well-being of persons with HD.

OBJECTIVE:

The study objectives were to assess the feasibility of remote healthcare delivery in HD patients, to identify socioeconomic factors which may explain differences in feasibility and to evaluate the impact of safer-at-home orders on HD patient stress levels.

METHODS:

This observational study of a clinical HD population during the 'safer-at-home' orders asked patients or caregivers about their current access to healthcare resources and patient stress levels. A chart review allowed for an assessment of socioeconomic status and characterization of HD severity.

RESULTS:

Two-hundred and twelve HD patients were contacted with 156 completing the survey. During safer-at-home orders, the majority of HD patients were able to obtain medications and see a physician; however, 25% of patients would not commit to regular telehealth visits, and less than 50% utilized an online healthcare platform. We found that 37% of participants were divorced/single, 39% had less than a high school diploma, and nearly 20% were uninsured or on low-income health insurance. Patient stress levels correlated with disease burden.

CONCLUSION:

A significant portion of HD participants were not willing to participate in telehealth services. Potential explanations for these limitations may include socioeconomic barriers and caregiving structure. These observations illustrate areas for clinical care improvement to address healthcare disparities in the HD community.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / Huntington Disease / COVID-19 Type of study: Experimental Studies / Observational study / Prognostic study / Randomized controlled trials Topics: Variants Limits: Adult / Female / Humans / Male / Middle aged Language: English Journal: J Huntingtons Dis Year: 2021 Document Type: Article Affiliation country: Jhd-200460

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / Huntington Disease / COVID-19 Type of study: Experimental Studies / Observational study / Prognostic study / Randomized controlled trials Topics: Variants Limits: Adult / Female / Humans / Male / Middle aged Language: English Journal: J Huntingtons Dis Year: 2021 Document Type: Article Affiliation country: Jhd-200460