Your browser doesn't support javascript.
Healthcare Delivery and Huntington's Disease During the Time of COVID-19.
Pfalzer, Anna C; Hale, Lisa M; Huitz, Elizabeth; Buchanan, Danielle A; Brown, Brittany K; Moroz, Sarah; Rouleau, Renee M; Hay, Kaitlyn R; Hoadley, Jennifer; Laird, Amy; Ciriegio, Abagail E; Watson, Kelly H; Jones, Maile T; Lin, Ya-Chen; Kang, Hakmook; Riordan, Heather; Isaacs, David A; McDonell, Katherine E; Compas, Bruce E; Claassen, Daniel O.
  • Pfalzer AC; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Hale LM; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Huitz E; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Buchanan DA; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Brown BK; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Moroz S; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Rouleau RM; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Hay KR; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Hoadley J; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Laird A; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Ciriegio AE; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Watson KH; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Jones MT; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Lin YC; Vanderbilt University Medical Center, Vanderbilt University, Nashville, TN, USA.
  • Kang H; Vanderbilt University Medical Center, Vanderbilt University, Nashville, TN, USA.
  • Riordan H; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Isaacs DA; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • McDonell KE; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Compas BE; Department of Psychology and Human Development, Vanderbilt University Medical Center, Nashville, TN, USA.
  • Claassen DO; Department of Neurology, Vanderbilt University Medical Center, Nashville, TN, USA.
J Huntingtons Dis ; 10(2): 313-322, 2021.
Article in English | MEDLINE | ID: covidwho-1195998
Semantic information from SemMedBD (by NLM)
1. Huntington Disease PROCESS_OF Patients
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Patients
2. Huntington Disease PROCESS_OF Persons
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Persons
3. Delivery of Health Care TREATS Huntington Disease
Subject
Delivery of Health Care
Predicate
TREATS
Object
Huntington Disease
4. Delivery of Health Care TREATS Patients
Subject
Delivery of Health Care
Predicate
TREATS
Object
Patients
5. Arsenical keratosis PROCESS_OF Patients
Subject
Arsenical keratosis
Predicate
PROCESS_OF
Object
Patients
6. Huntington Disease PROCESS_OF Participant
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Participant
7. Huntington Disease PROCESS_OF Community
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Community
8. Huntington Disease PROCESS_OF Patients
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Patients
9. Huntington Disease PROCESS_OF Persons
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Persons
10. Delivery of Health Care TREATS Huntington Disease
Subject
Delivery of Health Care
Predicate
TREATS
Object
Huntington Disease
11. Delivery of Health Care TREATS Patients
Subject
Delivery of Health Care
Predicate
TREATS
Object
Patients
12. Arsenical keratosis PROCESS_OF Patients
Subject
Arsenical keratosis
Predicate
PROCESS_OF
Object
Patients
13. Huntington Disease PROCESS_OF Participant
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Participant
14. Huntington Disease PROCESS_OF Community
Subject
Huntington Disease
Predicate
PROCESS_OF
Object
Community
ABSTRACT

BACKGROUND:

Safer-at-home orders during the COVID-19 pandemic altered the structure of clinical care for Huntington's disease (HD) patients. This shift provided an opportunity to identify limitations in the current healthcare infrastructure and how these may impact the health and well-being of persons with HD.

OBJECTIVE:

The study objectives were to assess the feasibility of remote healthcare delivery in HD patients, to identify socioeconomic factors which may explain differences in feasibility and to evaluate the impact of safer-at-home orders on HD patient stress levels.

METHODS:

This observational study of a clinical HD population during the 'safer-at-home' orders asked patients or caregivers about their current access to healthcare resources and patient stress levels. A chart review allowed for an assessment of socioeconomic status and characterization of HD severity.

RESULTS:

Two-hundred and twelve HD patients were contacted with 156 completing the survey. During safer-at-home orders, the majority of HD patients were able to obtain medications and see a physician; however, 25% of patients would not commit to regular telehealth visits, and less than 50% utilized an online healthcare platform. We found that 37% of participants were divorced/single, 39% had less than a high school diploma, and nearly 20% were uninsured or on low-income health insurance. Patient stress levels correlated with disease burden.

CONCLUSION:

A significant portion of HD participants were not willing to participate in telehealth services. Potential explanations for these limitations may include socioeconomic barriers and caregiving structure. These observations illustrate areas for clinical care improvement to address healthcare disparities in the HD community.
Subject(s)
Keywords

Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / Huntington Disease / COVID-19 Type of study: Prognostic study / Randomized controlled trials Limits: Adult / Female / Humans / Male / Middle aged Language: English Journal: J Huntingtons Dis Year: 2021 Document Type: Article Affiliation country: Jhd-200460

Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / Huntington Disease / COVID-19 Type of study: Prognostic study / Randomized controlled trials Limits: Adult / Female / Humans / Male / Middle aged Language: English Journal: J Huntingtons Dis Year: 2021 Document Type: Article Affiliation country: Jhd-200460