Care, crisis and coalition: imagining antiprophylactic citizenship through AIDS hospice activism.

ABSTRACT

Using crip theory, specifically Barounis' formulation of antiprophylactic citizenship, Piepzna-Samarasinha's conceptualisation of care work, and Shotwell's calls against purity, this paper analyses the making of the film HIV in the Rust Belt during the COVID-19 crisis. HIV in the Rust Belt (directed by Holly Hey) documents some of the experiences of local HIV survivors. During the course of filming, however, a story emerged about the importance of an AIDS facility, David's House Compassion, which had served as a hospice and a resource centre between 1988 to 2003. When COVID-19 arrived in the USA, we were mid-way through filming. Doing this work during the COVID-19 pandemic opened up a host of questions about the porousness of bodies as well as the slippage of time and stigma between the two pandemics. As we continued filming, we were made more aware that the story of David's House Compassion could be just as much as story of COVID-19, representative of antiprophylactic citizenship, an idea of belonging that comes from an openness and vulnerability that only sickness can offer.