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International transfers of personal data for health research following Schrems II: a problem in need of a solution.
Hallinan, Dara; Bernier, Alexander; Cambon-Thomsen, Anne; Crawley, Francis P; Dimitrova, Diana; Medeiros, Claudia Bauzer; Nilsonne, Gustav; Parker, Simon; Pickering, Brian; Rennes, Stéphanie.
  • Hallinan D; FIZ Karlsruhe-Leibniz-Institut für Informationsinfrastruktur, Hermann-von-Helmholtz-Platz 1, Eggenstein-Leopoldshafen, Germany. dara.hallinan@fiz-karlsruhe.de.
  • Bernier A; McGill University Faculty of Medicine, Centre of Genomics and Policy, Montreal, Canada.
  • Cambon-Thomsen A; CNRS, Center for Epidemiology and Research in POPulation health (CERPOP), Université de Toulouse, Inserm, UPS, Joint Unit 1295, Toulouse, France.
  • Crawley FP; Good Clinical Practice Alliance-Europe (GCPA) and Strategic Initiative for Developing Capacity in Ethical Review (SIDCER), Leuven, Belgium.
  • Dimitrova D; FIZ Karlsruhe-Leibniz-Institut für Informationsinfrastruktur, Hermann-von-Helmholtz-Platz 1, Eggenstein-Leopoldshafen, Germany.
  • Medeiros CB; Institute of Computing, University of Campinas, Campinas, Brazil.
  • Nilsonne G; Department of Clinical Neuroscience, Karolinska Institutet, Solna, Sweden.
  • Parker S; Swedish National Data Service, University of Gothenburg, Gothenburg, Sweden.
  • Pickering B; Cancer Research UK, London, UK.
  • Rennes S; German Human Genome-phenome Archive, DKFZ, Heidelberg, Germany.
Eur J Hum Genet ; 29(10): 1502-1509, 2021 10.
Article in English | MEDLINE | ID: covidwho-1217699
ABSTRACT
On 16 July 2020, the Court of Justice of the European Union issued their decision in the Schrems II case concerning Facebook's transfers of personal data from the EU to the US. The decision may have significant effects on the legitimate transfer of personal data for health research purposes from the EU. This article

aims:

(i) to outline the consequences of the Schrems II decision for the sharing of personal data for health research between the EU and third countries, particularly in the context of the COVID-19 pandemic; and, (ii) to consider certain options available to address the consequences of the decision and to facilitate international data exchange for health research moving forward.
Subject(s)

Full text: Available Collection: International databases Database: MEDLINE Main subject: Privacy / Information Dissemination / Pandemics / Social Media / SARS-CoV-2 / COVID-19 Type of study: Observational study Limits: Humans Country/Region as subject: North America Language: English Journal: Eur J Hum Genet Journal subject: Genetics, Medical Year: 2021 Document Type: Article Affiliation country: S41431-021-00893-y

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Privacy / Information Dissemination / Pandemics / Social Media / SARS-CoV-2 / COVID-19 Type of study: Observational study Limits: Humans Country/Region as subject: North America Language: English Journal: Eur J Hum Genet Journal subject: Genetics, Medical Year: 2021 Document Type: Article Affiliation country: S41431-021-00893-y