The impact of the coronavirus disease 2019 (covid-19) pandemic on young people with diabetes and preferences for future care: A patient survey

ABSTRACT

Aims: Covid-19 restrictions have impacted social interaction, work, education and care provision for young people with diabetes. Furthermore, people with diabetes have increased morbidity and mortality from covid-19. We aimed to explore the impact of the pandemic on young people's diabetes care and management;their psychosocial well-being;and identify preferences for future diabetes care. Methods: A survey was emailed to all patients aged 16-23 with diabetes attending two London (UK) hospital-based diabetes clinics. Descriptive and content analyses were conducted. Results: Response rate was 33% (n = 74/222). Respondents reflected clinic population in age, ethnicity and area-level deprivation, although males were underrepresented (34%, n = 25). Since the pandemic 55% (n = 41) felt well supported by their diabetes team;35% (n = 26) felt more confident and 40% (n = 29) more motivated to manage their diabetes. Conversely 22% (n = 16) felt less confident or motivated, which they attributed to decreased physical activity, disrupted diabetes routines and a lack of support. Mental well-being was reportedly negatively impacted in 57% (n = 42) of patients, with no differences by area-level deprivation or ethnicity. 31% (n = 23) and 41% (n = 30) of respondents felt more negatively about their diabetes and future health, respectively. Face-to- face care in the future remained the most popular option (69%, n = 51), despite increased virtual appointments during the pandemic. Conclusion: Negative impacts on mental well-being, feelings about diabetes and future health need to be considered when providing care for young people with diabetes. Variable experiences and views on care provision indicate the need for a flexible approach to future care delivery models.