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The patient's perspective of remote respiratory assessments during the COVID-19 pandemic.
Tattersall, Rachel; Carty, Simon; Meldrum, Dara; Hardiman, Orla; Murray, Deirdre.
  • Tattersall R; Department of Physiotherapy, Beaumont Hospital, Dublin, Ireland.
  • Carty S; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland.
  • Meldrum D; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland.
  • Hardiman O; School of Medicine, Royal College of Surgeons, Dublin, Ireland.
  • Murray D; Academic Unit of Neurology, Trinity College Dublin, Dublin, Ireland.
Amyotroph Lateral Scler Frontotemporal Degener ; 23(1-2): 76-80, 2022 02.
Article in English | MEDLINE | ID: covidwho-1258723
ABSTRACT
Forced vital capacity (FVC) is an essential respiratory measurement for assessment and monitoring of patients with Amyotrophic Lateral Sclerosis (ALS). Our clinic rapidly implemented remote assessment of FVC after COVID-19 related restrictions on respiratory testing were imposed, using mini-spirometers and video consultation. We sought to evaluate the patient's experiences of performing remote respiratory assessments to guide future development and optimisation of the service. Twenty-five patients completed surveys. The mean age was 65.2 years and average time from diagnosis was 17.04 (2-99) months. Seventy-two percent (n = 18) required help from a caregiver to perform the tests. Ninety-two percent (n = 23) of patients reported that overall, they were satisfied and were happy to continue with remote respiratory assessment. Reducing the number of clinic visits for review and assessment was valued by 92% (n = 23) and reducing the risk associated with COVID-19 was valued by 96% (n = 24). The highest frequency reported as acceptable for performing the remote breathing assessments was monthly (60%, n = 15), followed by every second month (28%, n = 7). Remote respiratory testing is viewed positively by patients. These technologies used in combination with video-consultations and other novel forms of remote monitoring implemented in response to the COVID-19 crisis will continue to be valuable tools for clinical care in future. However, further evaluation of the validity of remote respiratory assessment is required.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / COVID-19 / Amyotrophic Lateral Sclerosis Type of study: Diagnostic study / Experimental Studies / Observational study / Prognostic study / Qualitative research Limits: Aged / Humans Language: English Journal: Amyotroph Lateral Scler Frontotemporal Degener Year: 2022 Document Type: Article Affiliation country: 21678421.2021.1920982

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / COVID-19 / Amyotrophic Lateral Sclerosis Type of study: Diagnostic study / Experimental Studies / Observational study / Prognostic study / Qualitative research Limits: Aged / Humans Language: English Journal: Amyotroph Lateral Scler Frontotemporal Degener Year: 2022 Document Type: Article Affiliation country: 21678421.2021.1920982