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Clinical and psychosocioeconomic impact of COVID-19 pandemic on patients of the Indian Progressive Systemic Sclerosis Registry (IPSSR).
Kavadichanda, Chengappa; Shobha, Vineeta; Ghosh, Parasar; Wakhlu, Anupam; Bairwa, Devender; Mohanan, Manju; Janardana, Ramya; Sircar, Geetabali; Sahoo, Rasmi Ranjan; Joseph, Sneha; Negi, Vir Singh; Khanna, Dinesh; Shenoy, Padmanabha.
  • Kavadichanda C; Department of Clinical Immunology, Jawaharlal Institute of Postgraduate Medical Education and Research, Puducherry.
  • Shobha V; Department of Clinical Immunology and Rheumatology, St. John's Medical College Hospital, Bengaluru, Karnataka.
  • Ghosh P; Department of Rheumatology and Clinical Immunology, Institute of Post-Graduate Medical Education & Research and S. S. K. M. Hospital, Kolkata, West Bengal.
  • Wakhlu A; Department of Clinical Immunology and Rheumatology, RALC Campus, King George's Medical University, Lucknow, Uttar Pradesh.
  • Bairwa D; Department of Clinical Immunology, Jawaharlal Institute of Postgraduate Medical Education and Research, Puducherry.
  • Mohanan M; Centre for Arthritis and Rheumatism Excellence (CARE), Cochin, Kerala, India.
  • Janardana R; Department of Clinical Immunology and Rheumatology, St. John's Medical College Hospital, Bengaluru, Karnataka.
  • Sircar G; Department of Rheumatology and Clinical Immunology, Institute of Post-Graduate Medical Education & Research and S. S. K. M. Hospital, Kolkata, West Bengal.
  • Sahoo RR; Department of Clinical Immunology and Rheumatology, RALC Campus, King George's Medical University, Lucknow, Uttar Pradesh.
  • Joseph S; Centre for Arthritis and Rheumatism Excellence (CARE), Cochin, Kerala, India.
  • Negi VS; Department of Clinical Immunology, Jawaharlal Institute of Postgraduate Medical Education and Research, Puducherry.
  • Khanna D; Division of Rheumatology, Department of Internal Medicine, Scleroderma Program, University of Michigan, Ann Arbor, MI, USA.
  • Shenoy P; Centre for Arthritis and Rheumatism Excellence (CARE), Cochin, Kerala, India.
Rheumatol Adv Pract ; 5(2): rkab027, 2021.
Article in English | MEDLINE | ID: covidwho-1258797
ABSTRACT

OBJECTIVES:

The aim was to determine the impact of the coronavirus disease 2019 (COVID-19) pandemic on access to health care among patients with scleroderma and to analyse the economic and psychosocial impacts and the infection prevention measures taken by them during the pandemic.

METHODS:

A 25-item questionnaire designed to assess the components of the objectives was tele-administered between October 2020 and January 2021 to the patients enrolled in the Indian Progressive Systemic Sclerosis Registry.

RESULTS:

Of the 428 patients in the registry, 336 took part in the study. A scheduled outpatient visit was missed by 310 (92.3%) patients, and 75 (22.3%) skipped prescription drugs. During the pandemic, 75 (22.3%) had a family member lose a job. Financial difficulties were reported by 155 (46.1%), with 116 (34.5%) patients having to spend an additional INR 4000 (2000-10 000) [USD 54.9 (27.0-137.4)] to continue treatment. Although 35 patients (10.4%) had at least one symptom suggestive of COVID-19, infection was confirmed in only 4. None of them needed hospitalization or had adverse outcomes. Worsening of scleroderma was seen in 133 (39.6%) individuals, with 15 (4.5%) requiring hospitalization. Most (96%) of the patients were aware of infection prevention measures, and 91 (27.1%) had taken unproven prophylactic medications.

CONCLUSION:

Individuals with scleroderma in India have been affected during the pandemic owing to closure of hospital services, lack of transport, loss of jobs and the additional financial burden. Health-care providers should continue to educate patients to stay on their medications and encourage them to be vaccinated for COVID-19.
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Full text: Available Collection: International databases Database: MEDLINE Type of study: Experimental Studies / Observational study / Prognostic study Topics: Vaccines Language: English Journal: Rheumatol Adv Pract Year: 2021 Document Type: Article

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Full text: Available Collection: International databases Database: MEDLINE Type of study: Experimental Studies / Observational study / Prognostic study Topics: Vaccines Language: English Journal: Rheumatol Adv Pract Year: 2021 Document Type: Article