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How to manage with telemedicine people with neuromuscular diseases?
Spina, Emanuele; Trojsi, Francesca; Tozza, Stefano; Iovino, Aniello; Iodice, Rosa; Passaniti, Carla; Abbadessa, Gianmarco; Bonavita, Simona; Leocani, Letizia; Tedeschi, Gioacchino; Manganelli, Fiore; Lavorgna, Luigi.
  • Spina E; Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Via Pansini, 5, 81028, Naples, Italy. ema.spina@libero.it.
  • Trojsi F; Department of Advanced Medical and Surgical Sciences, AOU University of Campania "Luigi Vanvitelli", Caserta, Italy.
  • Tozza S; Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Via Pansini, 5, 81028, Naples, Italy.
  • Iovino A; Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Via Pansini, 5, 81028, Naples, Italy.
  • Iodice R; Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Via Pansini, 5, 81028, Naples, Italy.
  • Passaniti C; Department of Advanced Medical and Surgical Sciences, AOU University of Campania "Luigi Vanvitelli", Caserta, Italy.
  • Abbadessa G; Department of Advanced Medical and Surgical Sciences, AOU University of Campania "Luigi Vanvitelli", Caserta, Italy.
  • Bonavita S; Department of Advanced Medical and Surgical Sciences, AOU University of Campania "Luigi Vanvitelli", Caserta, Italy.
  • Leocani L; Experimental Neurophysiology Unit, Institute of Experimental Neurology (INSPE), San Raffaele Scientific Institute, Milan, Italy.
  • Tedeschi G; Vita-Salute San Raffaele University, Milan, Italy.
  • Manganelli F; Department of Advanced Medical and Surgical Sciences, AOU University of Campania "Luigi Vanvitelli", Caserta, Italy.
  • Lavorgna L; Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Via Pansini, 5, 81028, Naples, Italy.
Neurol Sci ; 42(9): 3553-3559, 2021 Sep.
Article in English | MEDLINE | ID: covidwho-1281287
ABSTRACT

INTRODUCTION:

COVID-19 pandemic radically transformed our daily clinical practice, raising the need not to lose close contact with patients without being able to see them face-to-face. These issues are even more felt and evident in fragile patients, as those affected by neuromuscular disease. An important help came from new digital technologies that allow clinicians to remotely monitor health status and any deterioration of chronically ill patients.

METHODS:

In this mini-review, an initiative of the "Digital Technologies, Web and Social Media Study Group" of the Italian Society of Neurology, we propose to analyze the approach to neuromuscular patients by looking over raising evidence on the main cornerstones of Telemedicine (TM) clinician-patient interaction, remote clinical assessment, remote monitoring, and digital therapeutics. In particular, we explored the strategies developed by researchers and their impact on the physical and emotional status of the patients, with particular focusing on their adherence to the program of virtual monitoring.

RESULTS:

TM plays an important role in each of four stages of approach to neuromuscular disease, having demonstrated validity in keep close clinical patient interaction, clinical assessment, remote monitoring, and telerehabilitation. Nevertheless, there is no remote alternative to electrophysiological testing neither validate tools to assess disability.

CONCLUSION:

The role of TM in neuromuscular care is yet underestimated but is crucial, beyond the pandemic era. Further development of TM is advisable, through making specific apps, remotely controlled by clinicians, and making more engaging clinicians-patients interaction. Last, it is necessary to ensure adequate internet access to everyone.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / COVID-19 / Neuromuscular Diseases Type of study: Experimental Studies / Prognostic study Limits: Humans Language: English Journal: Neurol Sci Journal subject: Neurology Year: 2021 Document Type: Article Affiliation country: S10072-021-05396-8

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / COVID-19 / Neuromuscular Diseases Type of study: Experimental Studies / Prognostic study Limits: Humans Language: English Journal: Neurol Sci Journal subject: Neurology Year: 2021 Document Type: Article Affiliation country: S10072-021-05396-8