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Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study.
Yuwen, Weichao; Duran, Miriana; Tan, Minghui; Ward, Teresa M; Cheng, Sunny Chieh; Ramirez, Magaly.
  • Yuwen W; School of Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, WA, United States.
  • Duran M; Department of Health Services, School of Public Health, University of Washington, Seattle, WA, United States.
  • Tan M; School of Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, WA, United States.
  • Ward TM; School of Nursing, University of Washington, Seattle, WA, United States.
  • Cheng SC; School of Nursing & Healthcare Leadership, University of Washington Tacoma, Tacoma, WA, United States.
  • Ramirez M; Department of Health Services, School of Public Health, University of Washington, Seattle, WA, United States.
JMIR Pediatr Parent ; 4(2): e27542, 2021 Jun 22.
Article in English | MEDLINE | ID: covidwho-1292076
ABSTRACT

BACKGROUND:

Ten million parents provide unpaid care to children living with chronic conditions, such as asthma, and a high percentage of these parents are in marginalized communities, including racial and ethnic minority and low-income families. There is an urgent need to develop technology-enabled tailored solutions to support the self-care needs of these parents.

OBJECTIVE:

This study aimed to use a participatory design approach to describe and compare Latino and non-Latino parents' current self-care practices, needs, and technology preferences when caring for children with asthma in marginalized communities.

METHODS:

The participatory design approach was used to actively engage intended users in the design process and empower them to identify needs and generate design ideas to meet those needs.

RESULTS:

Thirteen stakeholders participated in three design sessions. We described Latino and non-Latino parents' similarities in self-care practices and cultural-specific preferences. When coming up with ideas of technologies for self-care, non-Latino parents focused on improving caregiving stress through journaling, daily affirmations, and tracking feelings, while Latino parents focused more on relaxation and entertainment.

CONCLUSIONS:

Considerations need to be taken beyond language differences when developing technology-enabled interventions for diverse populations. The community partnership approach strengthened the study's inclusive design.
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Full text: Available Collection: International databases Database: MEDLINE Language: English Journal: JMIR Pediatr Parent Year: 2021 Document Type: Article Affiliation country: 27542

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Full text: Available Collection: International databases Database: MEDLINE Language: English Journal: JMIR Pediatr Parent Year: 2021 Document Type: Article Affiliation country: 27542