Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study.
JMIR Pediatr Parent
; 4(2): e27542, 2021 Jun 22.
Article
in English
| MEDLINE | ID: covidwho-1292076
ABSTRACT
BACKGROUND:
Ten million parents provide unpaid care to children living with chronic conditions, such as asthma, and a high percentage of these parents are in marginalized communities, including racial and ethnic minority and low-income families. There is an urgent need to develop technology-enabled tailored solutions to support the self-care needs of these parents.OBJECTIVE:
This study aimed to use a participatory design approach to describe and compare Latino and non-Latino parents' current self-care practices, needs, and technology preferences when caring for children with asthma in marginalized communities.METHODS:
The participatory design approach was used to actively engage intended users in the design process and empower them to identify needs and generate design ideas to meet those needs.RESULTS:
Thirteen stakeholders participated in three design sessions. We described Latino and non-Latino parents' similarities in self-care practices and cultural-specific preferences. When coming up with ideas of technologies for self-care, non-Latino parents focused on improving caregiving stress through journaling, daily affirmations, and tracking feelings, while Latino parents focused more on relaxation and entertainment.CONCLUSIONS:
Considerations need to be taken beyond language differences when developing technology-enabled interventions for diverse populations. The community partnership approach strengthened the study's inclusive design.
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Language:
English
Journal:
JMIR Pediatr Parent
Year:
2021
Document Type:
Article
Affiliation country:
27542
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