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Navigating the ethics of remote research data collection.
Gelinas, Luke; Morrell, Walker; White, Sarah A; Bierer, Barbara E.
  • Gelinas L; Advarra IRB, Columbia, MD, USA.
  • Morrell W; Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard, Cambridge, MA, USA.
  • White SA; Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard, Cambridge, MA, USA.
  • Bierer BE; Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard, Cambridge, MA, USA.
Clin Trials ; 18(5): 606-614, 2021 10.
Article in English | MEDLINE | ID: covidwho-1299310
ABSTRACT
COVID-19 has accelerated broad trends already in place toward remote research data collection and monitoring. This move implicates novel ethical and regulatory challenges which have not yet received due attention. Existing work is preliminary and does not seek to identify or grapple with the issues in a rigorous and sophisticated way. Here, we provide a framework for identifying and addressing challenges that we believe can help the research community realize the benefits of remote technologies while preserving ethical ideals and public trust. We organize issues into several distinct categories and provide points to consider in a table that can help facilitate ethical design and review of research studies using remote health instruments.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Data Collection Type of study: Experimental Studies / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: Clin Trials Journal subject: Medicine / Therapeutics Year: 2021 Document Type: Article Affiliation country: 17407745211027245

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Data Collection Type of study: Experimental Studies / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: Clin Trials Journal subject: Medicine / Therapeutics Year: 2021 Document Type: Article Affiliation country: 17407745211027245