Care and Precision Medicine Research in the Time of COVID-19.
Ethn Dis
; 31(3): 407-410, 2021.
Article
in English
| MEDLINE | ID: covidwho-1318484
ABSTRACT
Purpose:
Enhancing the bidirectional benefit of precision medicine research infrastructure may advance equity in research participation for diverse groups. This study explores the use of research infrastructure to provide human-centered COVID-19 resources to participants as a part of their research participation.Design:
The All of Us New England (AoUNE) consortium research team developed standardized check-in telephone calls to ask participants about their well-being and share COVID-19 resources.Participants:
A total of 20,559 participants in the AoUNE consortium received a COVID-19 check-in call.Methods:
Research assistants called participants during March-April 2020, distributed COVID-19 resources to interested participants, and subsequently rated call tone.Results:
Of the total cohort participants called, 8,512 (41%) spoke with a research team member. The majority of calls were rated as positive or neutral; only 3% rated as negative. African American and Black as well as Hispanic populations requested COVID-19 resources at higher rates than other groups.Conclusions:
Calls made to AoUNE participants were received positively by diverse groups. These findings may have implications for participant-centered engagement strategies in precision medicine research.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Population Health
/
COVID-19
Type of study:
Cohort study
/
Experimental Studies
/
Observational study
/
Prognostic study
/
Randomized controlled trials
Limits:
Humans
Language:
English
Journal:
Ethn Dis
Journal subject:
Social Sciences
/
Public Health
Year:
2021
Document Type:
Article
Affiliation country:
Ed.31.3.407
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