A survey on patients' disease perception and the impact of the COVID-19 pandemic on persons living with amyotrophic lateral sclerosis in Malaysia.
Neurodegener Dis Manag
; 11(4): 307-314, 2021 08.
Article
in English
| MEDLINE | ID: covidwho-1319563
ABSTRACT
Aim:
To investigate the patients' perception of their disease, its management and the impact of the COVID-19 pandemic on persons living with amyotrophic lateral sclerosis (ALS) in Malaysia. Patients &methods:
An online survey comprising 42 questions was conducted on ALS patients during the peak of the COVID-19 pandemic.Results:
Responses were received from 37/60 (62%) participants with ALS directly or through their caregivers. During the COVID-19 pandemic, two-thirds of patients were negatively impacted by the sudden disruption to their hospital appointments, rehabilitation sessions and reduced social interactions.Conclusion:
This study provided insight into patients' perception of their care and management of ALS in Malaysia which will facilitate in implementing changes that can improve care to persons living with this devastating illness.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Health Knowledge, Attitudes, Practice
/
COVID-19
/
Amyotrophic Lateral Sclerosis
Type of study:
Experimental Studies
/
Observational study
/
Randomized controlled trials
Limits:
Adult
/
Aged
/
Female
/
Humans
/
Male
/
Middle aged
Country/Region as subject:
Asia
Language:
English
Journal:
Neurodegener Dis Manag
Year:
2021
Document Type:
Article
Affiliation country:
Nmt-2021-0004
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