[Making COVID-19 research data more accessible-building a nationwide information infrastructure]. / COVID-19-Forschungsdaten leichter zugänglich machen Aufbau einer bundesweiten Informationsinfrastruktur.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz
; 64(9): 1084-1092, 2021 Sep.
Article
in German
| MEDLINE | ID: covidwho-1321726
ABSTRACT
Public health research and epidemiological and clinical studies are necessary to understand the COVID-19 pandemic and to take appropriate action. Therefore, since early 2020, numerous research projects have also been initiated in Germany. However, due to the large amount of information, it is currently difficult to get an overview of the diverse research activities and their results. Based on the "Federated research data infrastructure for personal health data" (NFDI4Health) initiative, the "COVID-19 task force" is able to create easier access to SARS-CoV-2- and COVID-19-related clinical, epidemiological, and public health research data. Therefore, the so-called FAIR data principles (findable, accessible, interoperable, reusable) are taken into account and should allow an expedited communication of results. The most essential work of the task force includes the generation of a study portal with metadata, selected instruments, other study documents, and study results as well as a search engine for preprint publications. Additional contents include a concept for the linkage between research and routine data, a service for an enhanced practice of image data, and the application of a standardized analysis routine for harmonized quality assessment. This infrastructure, currently being established, will facilitate the findability and handling of German COVID-19 research. The developments initiated in the context of the NFDI4Health COVID-19 task force are reusable for further research topics, as the challenges addressed are generic for the findability of and the handling with research data.
Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Information Dissemination
/
Biomedical Research
/
COVID-19
Type of study:
Prognostic study
/
Reviews
Limits:
Humans
Country/Region as subject:
Europa
Language:
German
Journal:
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz
Journal subject:
Public Health
Year:
2021
Document Type:
Article
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