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Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study.
Hanna, Kerry; Giebel, Clarissa; Butchard, Sarah; Tetlow, Hilary; Ward, Kym; Shenton, Justine; Cannon, Jacqueline; Komuravelli, Aravind; Gaughan, Anna; Eley, Ruth; Rogers, Carol; Rajagopal, Manoj; Limbert, Stan; Callaghan, Steve; Whittington, Rosie; Shaw, Lisa; Donnellan, Warren; Gabbay, Mark.
  • Hanna K; Department of Primary Care & Mental Health, 4591University of Liverpool, Liverpool, UK.
  • Giebel C; Department of Primary Care & Mental Health, 4591University of Liverpool, UK; NIHR ARC NWC, Liverpool, UK.
  • Butchard S; Department of Primary Care & Mental Health, 4591University of Liverpool, UK; NIHR ARC NWC, Liverpool, UK.
  • Tetlow H; SURF Liverpool, 4591University of Liverpool, Liverpool, UK.
  • Ward K; 130122The Brain Charity, Liverpool, UK.
  • Shenton J; Sefton Older People's Forum, Liverpool, UK.
  • Cannon J; Wigan Dementia Action Alliance, UK; Lewy Body Society, Wigan, UK.
  • Komuravelli A; 8255North West Boroughs NHS Trust, Warrington, UK.
  • Gaughan A; Together In Dementia Everyday (TIDE), Liverpool, UK.
  • Eley R; Liverpool Dementia Action Alliance, Liverpool, UK.
  • Rogers C; 71283National Museums Liverpool, Liverpool, UK.
  • Rajagopal M; Lancashire and South Cumbria NHS Trust, Lancashire, UK.
  • Limbert S; NIHR ARC NWC, Liverpool, UK.
  • Callaghan S; EQE Health, Liverpool, UK.
  • Whittington R; Me2U Day Care Centre, Liverpool, UK.
  • Shaw L; Department of Modern Languages and Cultures, 4591University of Liverpool, Liverpool, UK.
  • Donnellan W; Department of Psychology, 4591University of Liverpool, Liverpool, UK.
  • Gabbay M; Department of Primary Care & Mental Health, 4591University of Liverpool, Liverpool, UK; NIHR ARC NWC, Liverpool, UK.
Dementia (London) ; 21(1): 250-269, 2022 Jan.
Article in English | MEDLINE | ID: covidwho-1341435
ABSTRACT

OBJECTIVES:

To explore the different factors of resilience for people living with dementia and unpaid carers, in response to sudden changes in care and lifestyle during the COVID-19 pandemic.

METHODS:

Unpaid carers and people living with dementia were offered telephone interviews in April 2020 to discuss their experiences since the COVID-19 pandemic. Participants were asked about the benefits and challenges of accessing dementia support, as well as coping, symptoms, strategies and impacts. Each transcript was analysed using inductive and deductive thematic analysis by two researchers.

FINDINGS:

Semi-structured interviews from 50 participants (n = 42 unpaid carers and n = 8 people living with dementia) reported protective and risk factors of resilience concerning (1) communication, (2) adaptations, (3) support networks and (4) lifestyle factors and coping mechanisms.

CONCLUSIONS:

Resilience factors considered both organisational factors for external support, along with individual coping mechanisms. Organisations and social support services should consider resilience factors in future service planning, to better support people living with dementia, or caring someone living with dementia, during times of great stress. The ecological model of resilience established from this research refers to resilience during times of unexpected change in the COVID-19 pandemic; however, it could be considered relevant in other periods of high stress within this cohort.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Dementia / COVID-19 Type of study: Prognostic study / Qualitative research / Risk factors Limits: Humans Language: English Journal: Dementia (London) Year: 2022 Document Type: Article Affiliation country: 14713012211036601

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Dementia / COVID-19 Type of study: Prognostic study / Qualitative research / Risk factors Limits: Humans Language: English Journal: Dementia (London) Year: 2022 Document Type: Article Affiliation country: 14713012211036601