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The experience of children with a parent suffering from Amyotrophic Lateral Sclerosis during the COVID-19 pandemic.
Testoni, Ines; Palazzo, Lorenza; Ronconi, Lucia; Rossi, Gabriella; Ferizoviku, Jenny; Morales, Jose Ramon Pernia.
  • Testoni I; Department of Philosophy, Sociology, Pedagogy and Applied Psychology (FISPPA), University of Padova, 35139, Padova, Italy. ines.testoni@unipd.it.
  • Palazzo L; Emili Sagol Creative Arts Therapies Research Center, University of Haifa, 3498838, Haifa, Israel. ines.testoni@unipd.it.
  • Ronconi L; Department of Philosophy, Sociology, Pedagogy and Applied Psychology (FISPPA), University of Padova, 35139, Padova, Italy.
  • Rossi G; Department of Philosophy, Sociology, Pedagogy and Applied Psychology (FISPPA), University of Padova, 35139, Padova, Italy.
  • Ferizoviku J; A.I.S.L.A., Italian Association Amyotrophic Lateral Sclerosis, BAOBAB Project Coordinator, 20124, Milano, Italy.
  • Morales JRP; Fondazione Mediolanum, 20080, Basiglio (MI), Italy.
Sci Rep ; 11(1): 16046, 2021 08 06.
Article in English | MEDLINE | ID: covidwho-1345578
ABSTRACT
Children that have a parent with Amyotrophic Lateral Sclerosis (ALS) suffer from the progressive loss of their beloved ones. During the COVID-19 pandemic, the difficulties faced by these children have increased. The study aimed to detect whether there were differences between the minors experiencing a relative's ALS and the minors with no experience of ALS and it aimed also to detect the impact of COVID-19 pandemic on these minors. The study involved Italian participants, in particular the target group consisted of 38 children (7-18 years) (T0/T1); the control group consisted of 38 children (9-14 years) (T0 only). The following variables were measured attachment with the Security Scale (SS), affects with the Positive and Negative Affect Schedule for Children (PANAS-C), behavioural problems with Strengths and Difficulties Questionnaire (SDQ), death representation with Testoni Death Representation Scale for Children (TDRS-C), self-concept with the Multidimensional Self Concept Scale (MSCS), resilience and socio-emotional skills with the Devereux Student Strengths Assessment (DESSA). The results showed higher negative affectivity (p < .001), externalising behaviours (p < .05), uncertainty in reflective function (p < .05) in the target group compared to the control one; after the COVID-19 pandemic minors in the target group showed reduced certainty of mental states (p < .05) and interpersonal and scholastic self-esteem (p < .05). The impact of ALS on these minors is significant and produces negative affect, externalizing behaviours and uncertainty of mental states. The lockdown situation due to the COVID-19 pandemic has further aggravated minors in their school and interpersonal self-esteem.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: COVID-19 / Amyotrophic Lateral Sclerosis Type of study: Experimental Studies / Observational study Limits: Child / Humans Country/Region as subject: Europa Language: English Journal: Sci Rep Year: 2021 Document Type: Article Affiliation country: S41598-021-95338-3

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Full text: Available Collection: International databases Database: MEDLINE Main subject: COVID-19 / Amyotrophic Lateral Sclerosis Type of study: Experimental Studies / Observational study Limits: Child / Humans Country/Region as subject: Europa Language: English Journal: Sci Rep Year: 2021 Document Type: Article Affiliation country: S41598-021-95338-3