Hereditary colorectal cancer syndromes and the COVID-19 pandemic: results from a survey conducted in patients enrolled in a dedicated registry.
Qual Life Res
; 31(4): 1105-1115, 2022 Apr.
Article
in English
| MEDLINE | ID: covidwho-1368509
ABSTRACT
PURPOSE:
The coronavirus 2019 (COVID-19) pandemic has had profound consequences also for non-infected patients. This study aimed to evaluate the impact of the pandemic on the quality of life of a population with hereditary gastrointestinal cancer predisposition syndromes and on the surveillance/oncological care program of patients enrolled in a dedicated registry.METHODS:
The study was conducted by means of an online self-report survey during the first Italian national lockdown. The survey comprised four sections demographics; perception/knowledge of COVID-19; impact of the COVID-19 pandemic on surveillance and cancer care; health status (SF-12 questionnaire).RESULTS:
211 complete questionnaires were considered. 25.12% of respondents reported being not at all frightened by COVID-19, 63.98% felt "not at all" or "a little" more fragile than the healthy general population, and 66.82% felt the coronavirus to be no more dangerous to them than the healthy general population. 88.15% of respondents felt protected knowing they were monitored by a team of dedicated professionals.CONCLUSION:
Patients with hereditary gastrointestinal cancer predisposition syndromes reported experiencing less fear related to COVID-19 than the healthy general population. The study results suggest that being enrolled in a dedicated registry can reassure patients, especially during health crises.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Colorectal Neoplasms
/
COVID-19
Type of study:
Experimental Studies
/
Observational study
/
Qualitative research
/
Randomized controlled trials
Limits:
Humans
Language:
English
Journal:
Qual Life Res
Journal subject:
Rehabilitation
/
Therapeutics
Year:
2022
Document Type:
Article
Affiliation country:
S11136-021-02973-4
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