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Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement.
McDonagh, Janet E; Tattersall, Rachel; Clinch, Jacqui; Swan, Joanne; Foster, Helen E; McCann, Liza.
  • McDonagh JE; Versus Arthritis Centre for Epidemiology; Centre for MSK Research, University of Manchester, Stopford Building, 2nd floor, Oxford Rd, Manchester, M13 9PT, UK. janet.mcdonagh@manchester.ac.uk.
  • Tattersall R; NIHR Biomedical Research Centre, Manchester University Hospital NHS Trust, Manchester, UK. janet.mcdonagh@manchester.ac.uk.
  • Clinch J; Department of Paediatric and Adolescent Rheumatology, Royal Manchester Children's Hospital, Manchester University Hospitals NHS Trust, Manchester, UK. janet.mcdonagh@manchester.ac.uk.
  • Swan J; Sheffield Children's Hospital and Sheffield Teaching Hospitals, Manchester, UK.
  • Foster HE; Bristol Royal Hospital for Children and Royal National Hospital for Rheumatic Diseases, Bath, UK.
  • McCann L; Public Health Family Nurse, Family Nurse Partnership, Wallacetown Health Centre, NHS Tayside, Dundee, UK.
Pediatr Rheumatol Online J ; 19(1): 136, 2021 Aug 25.
Article in English | MEDLINE | ID: covidwho-1371971
ABSTRACT

BACKGROUND:

The importance of developmentally appropriate transitional care in young people with juvenile-onset rheumatic and musculoskeletal disease is well recognised. The Paediatric Rheumatology European Society (PReS) / European League Against Rheumatism (EULAR) Taskforce has developed international recommendations and standards for transitional care and a growing evidence base supports the positive benefits of such care. However, there is also evidence that universal implementation has yet to be realised. In 2020, against this background the COVID-19 pandemic arrived with significant impact on all our lives, young and old, patient, public and professional alike. The unfortunate reality of the pandemic with potential for unfavourable outcomes on healthcare provision during transition was acknowledged by the PReS working groups in a position statement to support healthcare professionals, young people and their caregivers.

AIM:

The aim of this review is to present the literature which provides the rationale for the recommendations in the PReS Position Statement. The following areas are specifically addressed the prime importance of care coordination; the impact of the pandemic on the various aspects of the transition process; the importance of ensuring continuity of medication supply; the pros and cons of telemedicine with young people; ensuring meaningful involvement of young people in service development and the importance of core adolescent health practices such as routine developmental assessment psychosocial screening and appropriate parental involvement during transitional care.
Subject(s)

Full text: Available Collection: International databases Database: MEDLINE Main subject: Rheumatology / Rheumatic Diseases / Transition to Adult Care / COVID-19 Type of study: Experimental Studies / Observational study / Randomized controlled trials Limits: Adolescent / Humans Country/Region as subject: Europa Language: English Journal: Pediatr Rheumatol Online J Year: 2021 Document Type: Article Affiliation country: S12969-021-00609-Y

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Rheumatology / Rheumatic Diseases / Transition to Adult Care / COVID-19 Type of study: Experimental Studies / Observational study / Randomized controlled trials Limits: Adolescent / Humans Country/Region as subject: Europa Language: English Journal: Pediatr Rheumatol Online J Year: 2021 Document Type: Article Affiliation country: S12969-021-00609-Y