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From Consultant to Co-investigator: One Diabetes Research Team's Journey of Patient Engagement.
Faulds, Eileen R; Lewis, Claudia; Dungan, Kathleen M; Happ, Mary Beth.
  • Faulds ER; College of Nursing, The Ohio State University, Columbus, OH, USA.
  • Lewis C; Division of Endocrinology, Diabetes & Metabolism, College of Medicine, The Ohio State University, Columbus, OH, USA.
  • Dungan KM; College Diabetes Network member, The Ohio State University, Columbus, OH, USA.
  • Happ MB; Division of Endocrinology, Diabetes & Metabolism, College of Medicine, The Ohio State University, Columbus, OH, USA.
West J Nurs Res ; 43(10): 924-929, 2021 10.
Article in English | MEDLINE | ID: covidwho-1406684
ABSTRACT
Patients with diabetes are experts in the lived experience of self-management, making patient engagement beyond the role of research "subject" imperative for the creation of health care solutions that meaningfully address the problems they identify. We discuss our research team's relationship with our university's College Diabetes Network (CDN), an advocacy and support group for emerging adults with diabetes. Our collaborative research relationship has spanned three years, and multiple research studies with members serving as co-designers, consultants, and co-investigators. We discuss the CDN's role in two particular studies in which CDN members made substantive contributions to study design, instrument adaptation, and interpretation of findings. Key CDN members played a larger role in research activities and facilitated sustained engagement with the larger university CDN chapter. Barriers encountered included navigating research regulatory requirements while engaging CDN members in research and facilitating sustained engagement as CDN membership changes.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Patient Participation / Diabetes Mellitus Type of study: Experimental Studies / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: West J Nurs Res Year: 2021 Document Type: Article Affiliation country: 0193945921992012

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Patient Participation / Diabetes Mellitus Type of study: Experimental Studies / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: West J Nurs Res Year: 2021 Document Type: Article Affiliation country: 0193945921992012