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Building Equitable Patient Partnerships during the COVID-19 Pandemic: Challenges and Key Considerations for Research and Policy.
Sayani, Ambreen; Maybee, Alies; Manthorne, Jackie; Nicholson, Erika; Bloch, Gary; Parsons, Janet A; Hwang, Stephen W; Lofters, Aisha.
  • Sayani A; Transition to Leadership Stream Postdoctoral Fellow, Women's College Research Institute, Women's College Hospital, Toronto, ON.
  • Maybee A; Independent Patient Partner and Co-founder, Patient Advisors Network, Toronto, ON.
  • Manthorne J; President and Chief Executive Officer, Canadian Cancer Survivor Network, Ottawa, ON.
  • Nicholson E; Director, Screening and Atlantic Canada Lead, Canadian Partnership Against Cancer, Toronto, ON.
  • Bloch G; Associate Professor, Department of Family and Community Medicine, University of Toronto; Family Physician, St. Michael's Hospital and Inner City Health Associates; Senior Fellow and AMS Phoenix Fellow, Wellesley Institute, Toronto, ON.
  • Parsons JA; Research Scientist, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Associate Professor, Department of Physical Therapy and the Rehabilitation Sciences Institute, University of Toronto, Toronto, ON.
  • Hwang SW; Professor of Medicine, Department of Medicine, University of Toronto; Director, MAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, ON.
  • Lofters A; Family Physician, Women's College Hospital; Associate Professor and Clinician Scientist, Department of Family and Community Medicine, University of Toronto; Chair in Implementation Science, Peter Gilgan Centre for Women's Cancers, Women's College Hospital, Toronto, ON.
Healthc Policy ; 17(1): 17-24, 2021 08.
Article in English | MEDLINE | ID: covidwho-1431157
ABSTRACT
The unequal social and economic burden of the COVID-19 pandemic is evident in racialized and low-income communities across Canada. Importantly, social inequities have not been adequately addressed and current public policies are not reflective of the needs of diverse populations. Public participation in decision-making is crucial and there is, therefore, a pressing need to increase diversity of representation in patient partnerships in order to prevent the further exclusion of socially marginalized groups from research and policy making. Deliberate effort and affirmative action are needed to meaningfully engage and nurture diverse patient partnerships by broadening the scope of the patient community to include excluded or underrepresented individuals or groups. This will help us co-develop ways to enhance access and equity in healthcare and prevent the systematic reproduction of structural inequalities that have already been heightened by the COVID-19 pandemic.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Research Design / Patient Selection / Health Equity / Delivery of Health Care / Biomedical Research / COVID-19 / Health Policy Type of study: Experimental Studies / Prognostic study / Randomized controlled trials / Systematic review/Meta Analysis Limits: Adult / Aged / Female / Humans / Male / Middle aged Country/Region as subject: North America Language: English Journal: Healthc Policy Year: 2021 Document Type: Article

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Research Design / Patient Selection / Health Equity / Delivery of Health Care / Biomedical Research / COVID-19 / Health Policy Type of study: Experimental Studies / Prognostic study / Randomized controlled trials / Systematic review/Meta Analysis Limits: Adult / Aged / Female / Humans / Male / Middle aged Country/Region as subject: North America Language: English Journal: Healthc Policy Year: 2021 Document Type: Article