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Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond.
Kaur, Manraj N; Skolasky, Richard L; Powell, Philip A; Xie, Feng; Huang, I-Chan; Kuspinar, Ayse; O'Dwyer, John L; Cizik, Amy M; Rowen, Donna.
  • Kaur MN; Patient-Reported Outcomes, Value and Experience (PROVE) Center, Department of Surgery, Brigham and Women's Hospital, Boston, MA, USA. mkaur17@bwh.harvard.edu.
  • Skolasky RL; Departments of Orthopedic Surgery and Physical Medicine & Rehabilitation, School of Medicine, Johns Hopkins University, Baltimore, MD, USA.
  • Powell PA; School of Health and Related Research, University of Sheffield, Sheffield, UK.
  • Xie F; Department of Health Research Methods, Evidence, and Impact, and Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, ON, Canada.
  • Huang IC; Department of Epidemiology and Cancer Control, and Comprehensive Cancer Center, St. Jude Children's Research Hospital, Memphis, TN, USA.
  • Kuspinar A; School of Rehabilitation Science, McMaster University, Hamilton, ON, Canada.
  • O'Dwyer JL; Academic Unit of Health Economics, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
  • Cizik AM; Department of Orthopedics, University of Utah, Salt Lake City, UT, USA.
  • Rowen D; School of Health and Related Research, University of Sheffield, Sheffield, UK.
Qual Life Res ; 31(4): 1191-1198, 2022 Apr.
Article in English | MEDLINE | ID: covidwho-1474067
ABSTRACT
The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic's impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no "one size fits all" solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Pandemics / COVID-19 Type of study: Observational study / Qualitative research Limits: Humans Language: English Journal: Qual Life Res Journal subject: Rehabilitation / Therapeutics Year: 2022 Document Type: Article Affiliation country: S11136-021-03012-y

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Pandemics / COVID-19 Type of study: Observational study / Qualitative research Limits: Humans Language: English Journal: Qual Life Res Journal subject: Rehabilitation / Therapeutics Year: 2022 Document Type: Article Affiliation country: S11136-021-03012-y