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Data Linkage in Australia: The First 50 Years.
Smith, Merran; Flack, Felicity.
  • Smith M; Population Health Research Network, University of Western Australia, 35 Stirling Highway, Crawley 6009, Australia.
  • Flack F; Population Health Research Network, University of Western Australia, 35 Stirling Highway, Crawley 6009, Australia.
Int J Environ Res Public Health ; 18(21)2021 Oct 28.
Article in English | MEDLINE | ID: covidwho-1488569
ABSTRACT
Population-based data linkage has a long history in Australia from its beginnings in Western Australia in the 1970s to the coordinated national data linkage infrastructure that exists today. This article describes the journey from an idea to a national data linkage network which has impacts on the health and well-being of Australians from preventing developmental anomalies to responding to the COVID-19 pandemic. Many enthusiastic and dedicated people have contributed to Australia's data linkage capability over the last 50 years. They have managed to overcome a number of challenges including gaining stakeholder and community support; navigating complex legal and ethical environments; establishing cross-jurisdictional collaborations, and gaining ongoing financial support. The future is bright for linked data in Australia as the infrastructure built over the last 50 years provides a firm foundation for further expansion and development, ensuring that Australia's linked health and human services data continues to be available to address the evolving challenges of the next half century.
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Full text: Available Collection: International databases Database: MEDLINE Document Type: Article Main subject: Pandemics / COVID-19 Subject: Pandemics / COVID-19 Type of study: Ethical aspects Language: English Year: 2021

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Full text: Available Collection: International databases Database: MEDLINE Document Type: Article Main subject: Pandemics / COVID-19 Subject: Pandemics / COVID-19 Type of study: Ethical aspects Language: English Year: 2021
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