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Exploring the challenges of accessing medication for patients with cystic fibrosis.
Herbert, Sophie; Rowbotham, Nicola Jane; Smith, Sherie; Wilson, Patrick; Elliott, Zoe C; Leighton, Paul A; Duff, Alistair; Smyth, Alan Robert.
  • Herbert S; Evidence Based Child Health Group, University of Nottingham School of Medicine, Nottingham, UK.
  • Rowbotham NJ; Evidence Based Child Health Group, University of Nottingham School of Medicine, Nottingham, UK nicola.rowbotham@nottingham.ac.uk.
  • Smith S; Evidence Based Child Health Group, University of Nottingham School of Medicine, Nottingham, UK.
  • Wilson P; Pharmacy Department, Nottingham University Hospitals NHS Trust, Nottingham, UK.
  • Elliott ZC; Parent of Children with Cystic Fibrosis, Nottingham, UK.
  • Leighton PA; NIHR Research Design Service for the East Midlands, University of Nottingham, Nottingham, UK.
  • Duff A; Clinical and Health Psychology, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
  • Smyth AR; Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Thorax ; 77(3): 295-297, 2022 03.
Article in English | MEDLINE | ID: covidwho-1515319
ABSTRACT
Reducing treatment burden in cystic fibrosis (CF) is the top research priority for patients and clinicians. Difficulty accessing medication is one aspect of treatment burden. We investigated this with an online survey available globally for patients with CF and healthcare professionals. Almost three quarters of patients with CF in our survey report difficulty getting repeat prescriptions on time, and most community pharmacists experience interrupted supplies of CF-specific medications. These barriers affect emotional and physical health of people with CF. Two-thirds of people with CF would like to get all their CF medication from one place, their CF centre.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Cystic Fibrosis Type of study: Observational study / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: Thorax Year: 2022 Document Type: Article Affiliation country: Thoraxjnl-2021-217140

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Cystic Fibrosis Type of study: Observational study / Prognostic study / Randomized controlled trials Limits: Humans Language: English Journal: Thorax Year: 2022 Document Type: Article Affiliation country: Thoraxjnl-2021-217140