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Exploring key stakeholders' attitudes and opinions on medical assistance in dying and palliative care in Canada: a qualitative study protocol.
Shapiro, Gilla K; Tong, Eryn; Nissim, Rinat; Zimmermann, Camilla; Allin, Sara; Gibson, Jennifer; Li, Madeline; Rodin, Gary.
  • Shapiro GK; Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada gilla.shapiro@uhnresearch.ca.
  • Tong E; Global Institute of Psychosocial, Palliative and End-of-Life Care (GIPPEC), University of Toronto, Toronto, Ontario, Canada.
  • Nissim R; Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
  • Zimmermann C; Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
  • Allin S; Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
  • Gibson J; Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
  • Li M; Global Institute of Psychosocial, Palliative and End-of-Life Care (GIPPEC), University of Toronto, Toronto, Ontario, Canada.
  • Rodin G; Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.
BMJ Open ; 11(12): e055789, 2021 12 03.
Article in English | MEDLINE | ID: covidwho-1550966
ABSTRACT

INTRODUCTION:

Canadians have had legal access to medical assistance in dying (MAiD) since 2016. However, despite substantial overlap in populations who request MAiD and who require palliative care (PC) services, policies and recommended practices regarding the optimal relationship between MAiD and PC services are not well developed. Multiple models are possible, including autonomous delivery of these services and formal or informal coordination, collaboration or integration. However, it is not clear which of these approaches are most appropriate, feasible or acceptable in different Canadian health settings in the context of the COVID-19 pandemic and in the post-pandemic period. The aim of this qualitative study is to understand the attitudes and opinions of key stakeholders from the government, health system, patient groups and academia in Canada regarding the optimal relationship between MAiD and PC services. METHODS AND

ANALYSIS:

A qualitative, purposeful sampling approach will elicit stakeholder feedback of 25-30 participants using semistructured interviews. Stakeholders with expertise and engagement in MAiD or PC who hold leadership positions in their respective organisations across Canada will be invited to provide their perspectives on the relationship between MAiD and PC; capacity-building needs; policy development opportunities; and the impact of the COVID-19 pandemic on the relationship between MAiD and PC services. Transcripts will be analysed using content analysis. A framework for integrated health services will be used to assess the impact of integrating services on multiple levels. ETHICS AND DISSEMINATION This study has received ethical approval from the University Health Network Research Ethics Board (No 19-5518; Toronto, Canada). All participants will be required to provide informed electronic consent before a qualitative interview is scheduled, and to provide verbal consent prior to the start of the qualitative interview. Findings from this study could inform healthcare policy, the delivery of MAiD and PC, and enhance the understanding of the multilevel factors relevant for the delivery of these services. Findings will be disseminated in conferences and peer-reviewed publications.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Suicide, Assisted / COVID-19 Type of study: Experimental Studies / Qualitative research / Randomized controlled trials Limits: Humans Country/Region as subject: North America Language: English Journal: BMJ Open Year: 2021 Document Type: Article Affiliation country: Bmjopen-2021-055789

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Suicide, Assisted / COVID-19 Type of study: Experimental Studies / Qualitative research / Randomized controlled trials Limits: Humans Country/Region as subject: North America Language: English Journal: BMJ Open Year: 2021 Document Type: Article Affiliation country: Bmjopen-2021-055789