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The voice of the youths and young adults with epilepsy in Taiwan
Epilepsia ; 62(SUPPL 3):335-336, 2021.
Article in English | EMBASE | ID: covidwho-1570610
ABSTRACT

Purpose:

This report summarizes an innovative nationwide, Taiwan Youth with Epilepsy Summit on 2020-11-21 at Tainan. This conference was hosted by the Tainan Epilepsy Association.

Method:

The process of the initiation, design and training for the conference was reviewed. Parts of the conference will be demonstrated.

Result:

This innovative conference entitled Taiwan Youth with Epilepsy Summit was attended by the invited members of the deputy of Tainan City Mayor and her members, academic leaders in pediatric and adult epileptologists, medical sociologists, educational professionals. The other participants included social workers, medical professional, medical students and people with epilepsy and their care givers from 12 out of 16 organizations of people with epilepsy in Taiwan. In total 153 persons attended the meeting. This is the biggest gathering in Tainan during the COVID-19 era. Six youths and young adults with epilepsy on behalf of people with epilepsy and their caregivers were the speakers, I firstly addressed the relationship between “Convention on the Rights of Persons with Disabilities, CRPD) and epilepsy. The others proposed some urgent biopsychosocial care and human right needs related to education (one speaker), vocation (two speakers) and traffic regulation (two speakers). Although Taiwan is not a member country of the United Nations, Taiwan is the only country to legislate for the implementation of CRPD. This conference was prepared for the Taiwan State Party Report of implementing the UNs Convention on the Rights of Persons with Disabilities in the last 4 years.

Conclusions:

The new paradigm of protecting the human rights and dignity of persons with disability as a national strategy for social welfare created the opportunities of autonomous individuals to participate social policy they concerned. The intelligent youths and young adults with epilepsy in this conference demonstrated their altruistic heart and behavior.
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Full text: Available Collection: Databases of international organizations Database: EMBASE Language: English Journal: Epilepsia Year: 2021 Document Type: Article

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Full text: Available Collection: Databases of international organizations Database: EMBASE Language: English Journal: Epilepsia Year: 2021 Document Type: Article