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Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic.
Solomon, George M; Bailey, Julianna; Lawlor, James; Scalia, Peter; Sawicki, Gregory S; Dowd, Christopher; Sabadosa, Kathryn A; Van Citters, Aricca.
  • Solomon GM; University of Alabama at Birmingham, 1900 University Blvd THT 422, Birmingham, AL 35294, United States. Electronic address: gsolomon@uabmc.edu.
  • Bailey J; University of Alabama at Birmingham, 1900 University Blvd THT 422, Birmingham, AL 35294, United States.
  • Lawlor J; University of Alabama at Birmingham, 1900 University Blvd THT 422, Birmingham, AL 35294, United States.
  • Scalia P; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, United States.
  • Sawicki GS; Division of Pulmonary Medicine, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, United States.
  • Dowd C; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814, United States.
  • Sabadosa KA; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814, United States.
  • Van Citters A; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, United States.
J Cyst Fibros ; 20 Suppl 3: 41-46, 2021 12.
Article in English | MEDLINE | ID: covidwho-1587338
ABSTRACT

BACKGROUND:

During the COVID-19 pandemic, CF centers shifted to a telehealth delivery model. Our study aimed to determine how people with CF (PwCF) and their families experienced telehealth and assessed its quality and acceptability for future CF care.

METHODS:

The CF Patient and Family State of Care Survey (PFSoC) was fielded from August 31-October 30, 2020. The PFSoC explored themes of overall telehealth quality, ease of use, desirability, and preference for a future mix of in-person and telehealth care. Demographic covariates considered included gender, age, CFTR modulator status, and region of residence.

RESULTS:

424 PwCF and parents of PwCF responded (47% parents). Most (81%) reported a telehealth visit which included a MD/APP and nurse team members. 91% found telehealth easy to use, and 66% reported similar/higher quality than in-person care. One-third (34%) reported the highest desire for future telehealth care, with 45% (n =212) desiring 50% or more of visits conducted via telehealth. Adults were more likely than parents to report highest desire for future telehealth (64% vs. 36%). Respondents who perceived telehealth as similar/higher quality were more likely to desire future telehealth compared to those who perceived telehealth as lower quality (96% vs. 50%). Mixed methods analysis revealed themes affecting perceptions of telehealth.

CONCLUSIONS:

PwCF desire for future telehealth was influenced by perception of quality and age. Several themes emerged that need to be explored as telehealth is adapted into the CF chronic care model, especially when thinking about integration into pediatric care.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / Communication Barriers / Disease Transmission, Infectious / Consumer Behavior / Cystic Fibrosis / COVID-19 Type of study: Observational study / Qualitative research Limits: Adult / Child / Humans Country/Region as subject: North America Language: English Journal: J Cyst Fibros Year: 2021 Document Type: Article

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Telemedicine / Communication Barriers / Disease Transmission, Infectious / Consumer Behavior / Cystic Fibrosis / COVID-19 Type of study: Observational study / Qualitative research Limits: Adult / Child / Humans Country/Region as subject: North America Language: English Journal: J Cyst Fibros Year: 2021 Document Type: Article