Healthcare Professionals' Experiences of the Barriers and Facilitators to Pediatric Pain Management in the Community at End-of-Life: A Qualitative Interview Study.
J Pain Symptom Manage
; 63(1): 98-105, 2022 01.
Article
in English
| MEDLINE | ID: covidwho-1632820
ABSTRACT
CONTEXTS Inadequate pain management in community pediatric palliative care is common. Evidence to inform improved pain management in this population is limited. OBJECTIVES:
To explore the barriers and facilitators to pediatric community-based pain management for infants, children and young people at end-of-life as perceived by healthcare professionals.METHODS:
A qualitative interview study was conducted. Semi-structured interviews were undertaken with 29 healthcare professionals; 12 nurses, five GPs, five consultants and registrar doctors, two pharmacists and five support therapists working in primary, secondary or tertiary care in the United Kingdom and involved in community end-of life care of 0 to 18-year-olds.RESULTS:
The data corpus was analyzed using an inductive thematic analysis and seven themes emerged parents' abilities, beliefs and wellbeing; working relationships between families and healthcare professionals, and between healthcare teams; healthcare professionals' knowledge, education and experience; health services delivery; nature of pain treatment; and pediatric-specific factors. Across themes, the concepts of partnership working between families and healthcare professionals, and within healthcare teams, and sharing expertise were prevalent.CONCLUSION:
Partnership working and trust between healthcare professionals and parents, and within healthcare teams, is needed for effective at-home pediatric palliative pain management. Community healthcare professionals require more education from experienced multidisciplinary teams to effectively manage pediatric pain at end-of-life and prevent emergency hospice or hospital admissions, particularly during the COVID-19 pandemic.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Pain Management
/
COVID-19
Type of study:
Prognostic study
/
Qualitative research
Limits:
Adolescent
/
Child
/
Humans
/
Infant
Language:
English
Journal:
J Pain Symptom Manage
Journal subject:
Neurology
/
Psychophysiology
/
Therapeutics
Year:
2022
Document Type:
Article
Affiliation country:
J.jpainsymman.2021.06.026
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