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Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada.
Siden, Ellie G; Carter, Rachel Z; Barwich, Doris; Hassan, Eman.
  • Siden EG; Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
  • Carter RZ; BC Centre for Palliative Care, New Westminster, British Columbia, Canada.
  • Barwich D; BC Centre for Palliative Care, New Westminster, British Columbia, Canada.
  • Hassan E; Department of Medicine, Division of Palliative Care, University of British Columbia, Vancouver, British Columbia, Canada.
Health Expect ; 25(1): 345-354, 2022 02.
Article in English | MEDLINE | ID: covidwho-1691571
ABSTRACT

BACKGROUND:

Despite the established benefits of Advance Care Planning (ACP), engagement remains low in British Columbia. Since 2016, a growing number of community-based nonprofits have offered ACP education. To date, no study has focused on the perspectives of nonprofits on ACP in British Columbia.

OBJECTIVE:

This study aimed to identify barriers and facilitating actions to ACP as perceived by British Columbian nonprofits.

DESIGN:

A mixed-methods design was used. Data were collected through online surveys and telephone interviews. SETTING AND

PARTICIPANTS:

Staff and volunteers from British Columbian nonprofits that are providing or interested in providing public education on ACP were recruited for this study.

RESULTS:

The lack of public awareness of ACP, the emotional difficulty of the conversation, the complicated ACP process, the belief that ACP is synonymous with completing a medical order form, the challenge of introducing ACP in different cultural contexts and the siloed approach to ACP education were rated as the most important barriers to ACP engagement. The most important facilitating actions were developing clear messages, improving ACP literacy, reframing ACP as part of life planning, simplifying ACP documentation and transfer, integrating ACP conversations into clinical practice and better collaboration between the health system and nonprofits.

DISCUSSION:

This study identifies numerous opportunities to improve ACP engagement in British Columbia from a community lens. To maximize ACP engagement, community-led ACP education should be offered in coordination with the health system.

CONCLUSION:

Community-led ACP education as well as collaboration and consultation with nonprofits are part of the solution to the low ACP engagement in British Columbia. PUBLIC CONTRIBUTION Study participants, including staff and volunteers at nonprofits, are members of the public.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Advance Care Planning Type of study: Observational study / Prognostic study / Randomized controlled trials Limits: Humans Country/Region as subject: North America Language: English Journal: Health Expect Journal subject: Health Services Research / Public Health Year: 2022 Document Type: Article Affiliation country: Hex.13390

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Advance Care Planning Type of study: Observational study / Prognostic study / Randomized controlled trials Limits: Humans Country/Region as subject: North America Language: English Journal: Health Expect Journal subject: Health Services Research / Public Health Year: 2022 Document Type: Article Affiliation country: Hex.13390