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Evaluation of a community-based performance arts programme for people who have experienced stroke in the UK: protocol for the SHAPER-Stroke Odysseys study.
Estevao, Carolina; Baldellou Lopez, Maria; Davis, Rachel E; Jarret, Lucinda; Soukup, Tayana; Bakolis, Ioannis; Healey, Andy; Harrington, Jean; Woods, Anthony; Crane, Nikki; Jones, Fiona; Pariante, Carmine; Fancourt, Daisy; Sevdalis, Nick.
  • Estevao C; Psychological Medicine, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK carolina.estevao@kcl.ac.uk.
  • Baldellou Lopez M; Centre for Implementation Science, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK.
  • Davis RE; Centre for Implementation Science, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK.
  • Jarret L; Rosetta Life Head Office, London, UK.
  • Soukup T; Centre for Implementation Science, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK.
  • Bakolis I; Centre for Implementation Science, King's College London, London, UK.
  • Healey A; Centre for Implementation Science, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK.
  • Harrington J; Department of Biostatistics and Health Informatics, Institute of Psychiatry, Psychology & Neuroscience, London, UK.
  • Woods A; Centre for Implementation Science, King's College London Institute of Psychiatry Psychology and Neuroscience, London, UK.
  • Crane N; Health Service and Population Research Department, King's Health Economics, King's College London, London, UK.
  • Jones F; Psychological Medicine, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
  • Pariante C; Department of Psychological Medicine, King's College London, London, UK.
  • Fancourt D; Psychological Medicine, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
  • Sevdalis N; Department of Psychological Medicine, King's College London, London, UK.
BMJ Open ; 12(3): e057805, 2022 03 11.
Article in English | MEDLINE | ID: covidwho-1741640
ABSTRACT

INTRODUCTION:

Stroke survivors, once in the community, face challenges with their long-term rehabilitation care and present higher levels of loneliness, depression and anxiety than the rest of the population. A community-based performance arts programme, Stroke Odysseys (SO), has been devised to tackle the challenges of living with stroke in the UK. In this study, we aim to evaluate the implementation, impact and experiences of SO for stroke survivors. METHODS AND

ANALYSIS:

Scaling-up Health Arts Programmes Implementation and Effectiveness Research (SHAPER)-SO aims to scale-up SO to 75 participants and 47 stakeholders, while simultaneously evaluating the effectiveness and implementation of the programme. The main research aim is to evaluate the implementation, effectiveness, impact and experiences of a community-based performance arts programme (SO for stroke survivors). This mixed-methods study will evaluate the experience and impact of SO on those participating using mixed methods (interviews, observations and surveys) before and after each stage and carry out non-participant observations during a percentage of the workshops, training and tour. Data will be analysed using quantitative and qualitative approaches. This is a study within the SHAPER programme. ETHICS AND DISSEMINATION Ethical approval has been granted by the King's College London PNM Research Ethics Panel, REC reference LRS/DP-20/21-21549. Written informed consent will be sought for participants and stakeholders. The results of the study will be reported and disseminated at international conferences and in peer-reviewed scientific journals. TRIAL REGISTRATION NUMBER NCT04864470.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Stroke / Stroke Rehabilitation Type of study: Experimental Studies / Observational study / Prognostic study / Qualitative research / Randomized controlled trials Limits: Humans Country/Region as subject: Europa Language: English Journal: BMJ Open Year: 2022 Document Type: Article Affiliation country: Bmjopen-2021-057805

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Stroke / Stroke Rehabilitation Type of study: Experimental Studies / Observational study / Prognostic study / Qualitative research / Randomized controlled trials Limits: Humans Country/Region as subject: Europa Language: English Journal: BMJ Open Year: 2022 Document Type: Article Affiliation country: Bmjopen-2021-057805