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Family caregivers' perspectives on their interaction and relationship with people living with dementia in a nursing home: a qualitative study.
van Corven, Charlotte T M; Bielderman, Annemiek; Lucassen, Peter L B J; Verbeek, Hilde; Lesman-Leegte, Ivonne; Depla, Marja F I A; Stoop, Annerieke; Graff, Maud J L; Gerritsen, Debby L.
  • van Corven CTM; Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands. charlotte.vancorven@radboudumc.nl.
  • Bielderman A; Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands.
  • Lucassen PLBJ; Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands.
  • Verbeek H; Department of Health Services Research, Living Lab in Ageing and Long-Term Care, Care and Public Health Research Institute, Maastricht University, Maastricht, the Netherlands.
  • Lesman-Leegte I; Department of General Practice and Elderly Care Medicine, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
  • Depla MFIA; Department of Medicine for Older People, Amsterdam Public Health Research Institute (APH), Amsterdam UMC, VU University Medical Center, Amsterdam, The Netherlands.
  • Stoop A; Department Tranzo, Scientific Center for Care and Welfare, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.
  • Graff MJL; Scientific Institute for Quality of Healthcare and Department of Rehabilitation, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands.
  • Gerritsen DL; Department of Primary and Community Care, Radboud Institute for Health Sciences, Radboud Alzheimer Center, Radboud University Medical Center, Nijmegen, the Netherlands.
BMC Geriatr ; 22(1): 212, 2022 03 16.
Article in English | MEDLINE | ID: covidwho-1745512
ABSTRACT

BACKGROUND:

Social interactions are important for people living with dementia in a nursing home. However, not much is known about interactions and relationships between residents and family caregivers and related experiences of family caregivers. We aim to advance the knowledge on how family caregivers interact with people living with dementia in a nursing home and how they maintain or redesign a meaningful connection.

METHODS:

Qualitative research using interviews with family caregivers (n = 31) to explore perspectives on their interaction and relationship with the person living with dementia. Interviews were held during the reopening of nursing homes after the first COVID-19 lockdown in the Netherlands. In this situation, family caregivers became more aware of their interaction and relationship with the resident, which provided a unique opportunity to reflect on this. The interviews explored the interaction and relationship in a broad sense, not specifically for the COVID-19 situation. Thematic analysis was performed to analyze the data.

RESULTS:

We were able to identify three key themes reflecting the experiences of family caregivers (1) changes in the interaction and relationship, (2) strategies to promote connection, and (3) appreciation of the interaction and relationship. From the viewpoint of family caregivers, the interaction and relationship are important for both the resident living with dementia and for themselves, and family caregivers have different strategies for establishing a meaningful connection. Nevertheless, some appear to experience difficulties with constructing such a connection with the resident.

CONCLUSIONS:

Our results provide a basis for supporting family caregivers in perceiving and establishing mutuality and reciprocity so that they can experience togetherness.
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Full text: Available Collection: International databases Database: MEDLINE Main subject: Dementia / COVID-19 Type of study: Qualitative research Limits: Humans Language: English Journal: BMC Geriatr Journal subject: Geriatrics Year: 2022 Document Type: Article Affiliation country: S12877-022-02922-x

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Full text: Available Collection: International databases Database: MEDLINE Main subject: Dementia / COVID-19 Type of study: Qualitative research Limits: Humans Language: English Journal: BMC Geriatr Journal subject: Geriatrics Year: 2022 Document Type: Article Affiliation country: S12877-022-02922-x