Living with cystic fibrosis during the COVID-19 pandemic: a social connectedness perspective.
Int J Qual Stud Health Well-being
; 17(1): 2062820, 2022 Dec.
Article
in English
| MEDLINE | ID: covidwho-1795455
ABSTRACT
PURPOSE:
This study explores the concept of social connectedness for adults with Cystic Fibrosis (CF), generally and during the onset of the COVID-19 pandemic, to help inform contemporary CF healthcare. Social connectedness is an essential component of belonging and refers to an individual's sense of closeness with the social world. Unique disease factors make exploration of social connectedness pertinent, added to by COVID-19, with the CF population potentially facing increased risk for severe illness.METHODS:
Seventeen adults with CF in Western Australia undertook interviews, with findings categorized as overarching themes.RESULTS:
In a general sense, participants described social connectedness challenges caused by CF, despite which they reported meaningful connections that benefits their mental and physical health. Within a COVID-19 specific context, participants demonstrated resilience in the face of adversity, highlighted the importance of empathy in relation to the pandemic, and described how social support is both an outcome and enhancer of social connectedness.CONCLUSIONS:
This study contributes to limited social connectedness literature within CF and chronic illness in general, highlighting the importance of social connectedness awareness raising, assessments and interventions in CF healthcare inside and outside the COVID-19 pandemic.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Cystic Fibrosis
/
COVID-19
Type of study:
Observational study
/
Prognostic study
Limits:
Adult
/
Humans
Language:
English
Journal:
Int J Qual Stud Health Well-being
Year:
2022
Document Type:
Article
Affiliation country:
17482631.2022.2062820
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