Neurodisability care in the time of COVID-19.
Child Care Health Dev
; 48(6): 901-905, 2022 11.
Article
in English
| MEDLINE | ID: covidwho-1819879
ABSTRACT
BACKGROUND:
The COVID-19 pandemic resulted in an unprecedented societal and healthcare global crisis. Associated changes in regular healthcare provision and lifestyle through societal lockdown are likely to have affected clinical management and well-being of children/young people with neurodisability, who often require complex packages of multidisciplinary care.METHODS:
We surveyed 108 families of children/young people with severe physical neurodisability and multiple comorbidities to understand how the pandemic had affected acute clinical status, routine healthcare provision, schooling and family mental and social well-being.RESULTS:
A significant proportion of families reported missing hospital appointments and routine therapy, with subsequent worsening of symptoms and function. Families additionally described worsening stress and anxiety during the pandemic, regardless of their baseline level of socio-economic deprivation.CONCLUSION:
This highlights the profound effect of the COVID-19 pandemic on health and function in young people with severe neurodisabilities and emphasizes the clear need to better understand how to support this vulnerable population moving forwards.Keywords
Full text:
Available
Collection:
International databases
Database:
MEDLINE
Main subject:
Disabled Persons
/
COVID-19
Type of study:
Observational study
/
Prognostic study
/
Randomized controlled trials
Limits:
Adolescent
/
Child
/
Humans
Language:
English
Journal:
Child Care Health Dev
Year:
2022
Document Type:
Article
Affiliation country:
Cch.13015
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