Your browser doesn't support javascript.
Neurodisability care in the time of COVID-19.
Arichi, Tomoki; Cadwgan, Jill; McDonald, Aoife; Patel, Anita; Turner, Susie; Barkey, Sinead; Lumsden, Daniel E; Fairhurst, Charlie.
  • Arichi T; Children's Neurosciences, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • Cadwgan J; Centre for the Developing Brain, School of Biomedical Engineering and Imaging Sciences, King's College London, London, UK.
  • McDonald A; Department of Bioengineering, Imperial College London, London, UK.
  • Patel A; Children's Neurosciences, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • Turner S; School of Life Sciences, King's College London, London, UK.
  • Barkey S; Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK.
  • Lumsden DE; Children's Neurosciences, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • Fairhurst C; Children's Health, Dublin, Ireland.
Child Care Health Dev ; 48(6): 901-905, 2022 11.
Article in English | MEDLINE | ID: covidwho-1819879
ABSTRACT

BACKGROUND:

The COVID-19 pandemic resulted in an unprecedented societal and healthcare global crisis. Associated changes in regular healthcare provision and lifestyle through societal lockdown are likely to have affected clinical management and well-being of children/young people with neurodisability, who often require complex packages of multidisciplinary care.

METHODS:

We surveyed 108 families of children/young people with severe physical neurodisability and multiple comorbidities to understand how the pandemic had affected acute clinical status, routine healthcare provision, schooling and family mental and social well-being.

RESULTS:

A significant proportion of families reported missing hospital appointments and routine therapy, with subsequent worsening of symptoms and function. Families additionally described worsening stress and anxiety during the pandemic, regardless of their baseline level of socio-economic deprivation.

CONCLUSION:

This highlights the profound effect of the COVID-19 pandemic on health and function in young people with severe neurodisabilities and emphasizes the clear need to better understand how to support this vulnerable population moving forwards.
Subject(s)
Keywords

Full text: Available Collection: International databases Database: MEDLINE Main subject: Disabled Persons / COVID-19 Type of study: Observational study / Prognostic study / Randomized controlled trials Limits: Adolescent / Child / Humans Language: English Journal: Child Care Health Dev Year: 2022 Document Type: Article Affiliation country: Cch.13015

Similar

MEDLINE

...
LILACS

LIS


Full text: Available Collection: International databases Database: MEDLINE Main subject: Disabled Persons / COVID-19 Type of study: Observational study / Prognostic study / Randomized controlled trials Limits: Adolescent / Child / Humans Language: English Journal: Child Care Health Dev Year: 2022 Document Type: Article Affiliation country: Cch.13015